Today I met with GP and we discussed the Rheumi's opinion that I know have FM and what it means...Looking to discuss this with other AS'ers who have an FM diagnosis too...I spent so much time with inflammation pain that this is all new to me...She suggested that FM isn't considered a muscle pain problem anymore...more a brain message problem...people with AS are susceptible to FM because we spend so much time in pain...Kind of makes sense?....The difference is this FM pain isn't causing damage and in a sense should be ignored...Her word is to 'distract' oneself..and try to reprogram the brain not to send the message is a problem...As you all know that is kind of the opposite of listening to our bodies to avoid flares...This all makes sense but scares me...If the Rhuemi is wrong and the AS isn't controlled I could do worse damage to my joints...and more activity usually equals more pain and fatigue....Anyone got ideas? Thoughts?...I have read ...When the body says no...which a few people mentioned...And I am re- reading How the Brain Heals itself....There's a chapter in there on pain....Hard not to feel like it,s all in your head...???...HELP Pls.
Diagnosed with AS in 2007 Hx of episodic back pain since I was 13. Fibromyalgia Diagnosed Feb. 2013 methotrexate and Enbrel Started LSD Feb 2012 Vit B,C,D, fish oil, folic acid, 5HTP, Gabba,Magnessium. I am so much more then my symptoms:)
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