Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Way to much pain, it is winning!!!

I just don't know what to do any more. It seems like every day is worse than the day before. I take what the doctor tells me and it does not help at all. I was to take my little girl to the doctor for a glueco test this morning and I can't drive. They are letting her come in this after noon when my husband gets off work.

I keep asking my self why am I fighting so hard to get up every day and keep going when the pain is so bad it hurts to breath. I know for my family but it hurts them to see me this way and can't do any thing about it. There has to be a point to this hell.

It seems like every time I get some of my faith back some thing happens and pushes me back again. Ok, thanks for listening I am going to go lay down and read and see if I can get thur this day.

I love you all.

Hugs,
Donna

Love comes in all shapes and sizes

Hi Donna,
So sorry to hear that you cant take your little girl to the drs today. It can be very upsetting and frustrating when you have an agenda and you just can't physically do it. I remember crying most of one morning when I had to ring my friend to take my three little ones to swimming lessons. I tried really hard too but my neck was so sore. It sucks! The thing to remember is that your family love you and it's so great that you are their mum and that they get to see you every day. I am hoping that you will be like me and see much better days with your AS in the future. Hang in there!
Best wishes and love all the way from Aussie.
Debra.

Keep on fighting, you musnt let the AS win.

Janet

aka Johnti

Hello Donna

Good to see you posting.

Sorry you are in pain. Don't feel guilty about letting the family down, they love you and would sooner have you there doing nothing than not have you at all.

You should just do what makes you feel good, so go and enjoy your book. At least you can get lost in the story and forget about your troubles for a while.

Best wishes from your friend in England.


Carol

Hi Donna sorry to hear your having a especially hard time right now. Hope things start easing for you soon. Never give up.


Rick

Donna!
You too, huh....I can barely breathe today without pain, don't drive when flaring, please!! Hang in there, I'm sneaking in here to post, you are doing the right thing, read a good book that focuses your mind away from your pain...it may be hard but you can do it...you rock, hang in there!!

Peace
Linc

Linc O'Brien

Donna, I'm so sorry that you're feeling this way. Everyone has already said what I would say, so I'll just add that you are a wonderful person. Your beautiful soul shines through your pain, and I am certain that your kids are learning what true beauty and perseverance are by watching you.

Many hugs,

Kat

HeyDebra.

Thank you for your words. I love my kids and I hate that they have to see me like this. My little girl tells me every day they pray for me at her school. My son knowing I did not feel good the other day told his teacher because we was to have a meeting with her. I did not say any thing to him about not feeling good because I try to hide the worst from them. So his teach called me and ask if we could do it over the phone because he told me you was not feeling well.

They are two good kids and a blessing from God and I thank him for both of my children.

Hugs,
Donna

Love comes in all shapes and sizes

aka Johnti,

I am trying not to let AS win but I have been fighting for so long there are days that I ask my self why. But then I pull up my boot stapes as push through another day. Thank you for your support.


Hugs,
Donna


Love comes in all shapes and sizes

Carol

You are so sweet and thank you for all your e-mails and PM's. I know my family wants me here and all but when I am down for a few days you should see my house. Then I yell and it seems like I right back where I was. I am not saying it is them or me. It is this dam AS I get angery at it and then yell at the family because you can yell at the AS.


But thank you for writing and I did read again yesterday and go some good sleep with help from my little friends my doctor gives me.

Take care.

Hugs,
Donna

Love comes in all shapes and sizes