Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group New Here

Thank You! I look forward to getting to know you better. It is so nice to share with those who truely can understand what I am going through.

Thanks!!

Yes you are sooo right.. Thanks :)

there are a few of us that are stooped, in wheelchairs, I am starting to stoop, and I go from cane to walker when the flares are so bad I start falling down, for the pain never goes away an the doc's pain scale I am always a 5or6, then a flare I tell doc that a 10 just aint high enough..I have heard that when you are fused the pain goes away, I just recently found out that my si is fused to the hip/pelvic bone that would explain why I have no more pain other than the hip joint itself in that area....if you are having real bad spasms talk to your doc about muscle relaxants......one day at a time.....oak

I am older then I look and I feel older than I am

Hi Tricia,

Just want to give you big WELCOME

Hugs,
Sinta

FOURTEEN !!!!!!!!!!!!!!!!!

Hi Tricia,

You asked a couple of questions of other people. I hope you don't mind if I put my 2 cents in on the answer. My disease activity has fused my left SI (sacroilliac) and squared off 4 of the vertebrae in my thorasic (mis back) region. Yet, along with all the expected aches and pains, my neck just feels like hell much of the time, to varying degrees depending on the day. I have a feeling that, although this may indicate AS activity in my neck and I must get that checked, it's due, at least in part, to compensation for the areas that are actually fused/affected. You know how if you limp on one leg for too long, the other leg gets sore. In our backs it can work the same way. The muscle tension begins to affect everything, as the muscles try to compensate for and protect our joints.

It's a theory anyway. Do you go for massage?

What meds have you been on? I understand the stoop concern. I'm so anal about my posture that the idea of getting a stoop hits my ego and self-image big time. There are tons of stretches and exercises you can do to mitigate the stoop factor before it gets really bad. They may not stop the stoop altogether, but they will at least slow it down - hopefully to a crawl.

Anyway, I just wanted to try to reassure you on some of the physical stuff.

Hugs,

Kat

Thanks for the info...I am so far not fused, at least the X-rays have not shown that. I guess that is why I am in so much pain???? I will be talking to the doctor about muscle relaxants.. Thanks!

Thank You! I love your signature by the way!! :)

Thanks for the input! So far they have me on Celabrex??? But I am now being refered to a Rheumy so I am sure I will be put on something. My problem is that I have a lot of reactions to medication. Celabrex has given me serious hives>>>>Yikes! So I don't know. So far I have just tolerated all the pain. My doctor can't believe it. Every time I try to even take a asprin the hives begin. Kind of no fun if you know what I mean. I was just thinking of getting a massage. I think I deserve it. This diagnosis has taken me a few steps back. I am a strong person, and I know I can deal with this, but it is still pretty new. I think a massage is definately in order. Would sure help me relax....:)