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Joined: Dec 2004
Posts: 5
New_Member
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OP
New_Member
Joined: Dec 2004
Posts: 5 |
George, I am aware of this Vancouver group; receive their newletters but I haven't been moved to go a meeting because:
1) I saw nothing about NSD in their materials;
2) I saw they serve donuts; and
3) They seem to be pharmacologically inclined.
Hey,,,but are you in Vancouver?
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Joined: Dec 2004
Posts: 5
New_Member
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OP
New_Member
Joined: Dec 2004
Posts: 5 |
Yes it is pronounced Keeeeeeeeeeeeenwaaaaaaaaaaahhhhhhhhhhhhh.
It can be made as bland or as tastey as you like.
FOr a savory version, start by frying onions in hot olive oil, throw in some mushrooms and sundried tomatoes, then add the grain and use stock instead of water.
I don't know what it is about this grain that doesn't exacerbate the KP. I think it is coated...like coated asprin, or something...or for some reason the KP do not like it.
I don't know. I know that I am not one for rocking the boat...and I am reluctant to introduce new things into my diet for fear of risking a flare up...so I do not advocate that people take risks on starchy foods...but if anyone does try the Quinoa, I'd be eager to hear about it.
D.
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Joined: Apr 2002
Posts: 2,485
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2002
Posts: 2,485 |
Hi doodie, great to hear you are doing well. I will look out for quinoi (quinoa?) and give it a try. I am pretty sensitive to many foods eg: grains (except rice), legumes, dairy, onions, and to some extent I am sensitive to nuts. However I can eat white rice despite its very high starch content. Yep it is an exception to my 'no grains' and 'no starch' rules. So I am not surprised if there are other highly starchy foods that keep our gut flora happy. ~~~~ My Blog ~~~~"Thy food shall be thy remedy." - Hippocrates, 500 BC
what I can eat on the diet (click here) -- my blog -- contact me (PM is broken) "Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
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Joined: Apr 2002
Posts: 2,485
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2002
Posts: 2,485 |
>> Tsk, tsk... Next thing you know you will be advocating for double-blind, placebo-controlled, >> cohort-matched, clinical trials, which, as we all know, is the road to perdition. hmmm, do I detect a note of sarcasm ??? our good old buddy jc wouldn't ridicule a newbie ??? Some things are better learned from personal experience. I tested out the NSD on myself and it works for me. I know from constant testing and retesting that certain foods cause enormous inflammation in *me*. There are many things that you and I both know from experience that didn't require a double-blind, placebo-controlled, cohort-matched, clinical trial in order to verify it. Hey, I am not saying that these well designed trials are rubbish - far from it they are extremely useful tools. But it concerns me that some think the personal experiences of other people are worthless and should be ridiculed just because they haven't been verified under clinical conditions. ok, i'm getting down from the soapbox now :-) z  .....Buddy JC .... ~~~~ My Blog ~~~~"Thy food shall be thy remedy." - Hippocrates, 500 BC
what I can eat on the diet (click here) -- my blog -- contact me (PM is broken) "Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Hiya,
thanks for sharing, I still think the diet is something everyone shoud try and if it works then it'll save them a whole load of trouble rather than rely long term the alternative many are offered nsaids.
I've found that saurkrat also seems to help the neck face pain.....apparently in eastern europe it is a hangover cure....not tried that as I do n't drink these days...but there's a protective enzine in the cabbage.....apparently very protective against bowel cancer etc......
We have fresh salmon available here but it's all farmed and mushy....but I try and get some of the oily mackeral type fish....(although I hate fish). I used to catch me own but these days it's not an option.
Happy New Year and by the way Welcome to KickAS
David
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Joined: Apr 2002
Posts: 2,485
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2002
Posts: 2,485 |
>> And totally avoiding carbs may not be practicable or even healthy in the long run. Hi ram, the NSD doesn't have to be low carb, although it is very low in *starch*. So unfortunately the table you posted doesn't really help us here. For example low starch fruits are not restricted on the NSD despite being reasonably high in carbohydrates. I eat plenty of carbs in the form of fresh fruit and dried fruit and they don't cause inflammation, nor are they restricted in the NSD. >> Too much protein overloads the kidneys and too much fat is also not too good for health. yep, I agree. And excess fat can be kinda harsh on the pancreas, liver and gallbladder. I don't need to eat much fat or protein myself. I do eat rice, but otherwise adhere to the NSD. But don't make the mistake of thinking foods with less starch than rice must be safer than rice. Rice is a special case, and I am not at all clear on what percentage of ppl on the NSD have found they can tolerate rice. I just know that there is at least three of us. Normally the more starch in a food, the more inflammation I get. But here are my thoughts:...the structure of the starch varies a great deal from plant to plant, and this is also true for the dietary fibre in each plant. The variation in the structure starches, dietary fibre, polysaccharides, and simple sugars will result in different gut flora.... so in some unusual cases a starchy or high dietary fibre food may in fact allow for beneficial flora to flourish and significantly out compete the more harmful gut flora. ~~~~ My Blog ~~~~"Thy food shall be thy remedy." - Hippocrates, 500 BC
what I can eat on the diet (click here) -- my blog -- contact me (PM is broken) "Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
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Joined: Sep 2001
Posts: 2,364
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Sep 2001
Posts: 2,364 |
In reply to:
>> Too much protein overloads the kidneys and too much fat is also not too good for health.
yep, I agree. And excess fat can be kinda harsh on the pancreas, liver and gallbladder. I don't need to eat much fat or protein myself.
Well this is not my personal experience, is it yours? I will shortly be completing 8 years of the London AS diet and though blood tests indicate urea significantly higher than 'normal' (as is to be expected with a high protein consumption), kidney and liver function remain normal. Cholesterol is low and BM index is 22. I am sure NSAIDs and DMARDs must be a far greater threat to internal organs than this diet.
And what's he then that says I play the villain
When this advice is free I give and honest
Edited by bilko on 01/07/05 07:21 AM (server time).
'Then you should say what you mean,' the March Hare went on. 'I do,' Alice hastily replied; 'at least - at least I mean what I say - that's the same thing , you know.' 'Not the same thing a bit!' said the Hatter.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Doodie, I too eat Quinoa; although, I find that I have to rinse it really really well or the taste is a tad too strong for my liking. Not to mention that the rinsing process helps to get rid of more of the starch. Also, thanks for posting your story. It's always good to hear when someone has had success with something. I do take issue with one comment: "All of this affirms that we need to take responsibility for our own health...not to sit passively and swallow the pills they sell us."Please do not make the assumption that people who take the pills are necessarily being passive or not taking responsibility for their own health. There are many who have not had the results you have with dietary changes and in order to keep their disease under control must take the pills. Many of these people combine the pills with exercise and diet. This particular issue is quite sensitive here and there are alot of folks who feel that comments such as this belittle them and their personal efforts to live with and combat this disease just because they don't go whole hog NSD. So, while I agree with your sentiment (we do, indeed, need to take responsibility for our health), perhaps in future you might word it slightly differently, to take into account the feelings of the people who have found that the NSD didn't work for them, or who have chosen to take a different route.  Hugs and thanks again for sharing your success, Kat "A life lived in fear is a life half lived." - Strictly Ballroom
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Feb 2002
Posts: 942
Senior_AS_Kicker
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Senior_AS_Kicker
Joined: Feb 2002
Posts: 942 |
In reply to:
hmmm, do I detect a note of sarcasm ??? our good old buddy jc wouldn't ridicule a newbie ???
zark,
I wish to apologize if anyone thought I was ridiculing someone. I noted that Billy has been a member since July and has made a number of posts, so I would think of him as something other than a newbie.
In reply to:
Hey, I am not saying that these well designed trials are rubbish - far from it they are extremely useful tools. But
What I understand about language is that your use of "But" discounted the previous statement. So, okay, you are playing to an audience who may fail to understand the importance of, or could care less about, double-blind, placebo-controlled, cohort-matched studies; understood. Some of us are trying to make sense of the disease in a different way.
Billy was honest enough to ask the question: "How can someone say a non-starch diet is working when he is eating starch?" It was a valid question.
Yes, I was being sarcastic when I drew attention to his question with my comment. He was applying logic to a discussion about diet therapy, which I can attest from much personal experience is unwanted and unappreciated by some who propound such an approach in the treatment of ankylosing spondylitis
In reply to:
it concerns me that some think the personal experiences of other people are worthless and should be ridiculed just because they haven't been verified under clinical conditions.
It would concern me, as well, since I consistently have said that personal experience is worthwhile and to be validated, so I wonder why you bring it up? I noted several things of interest in the initial post: a tolerance of quinoa already received comment. The post also mentioned the use of marijuana which is getting more and more medical attention. I also noted that, generally speaking, the person found a change in diet to be helpful.
Sincerely,
jcwinnie
Sarcasm comes from the Latin, sarcare, which means to tear flesh.
P.S. You want positivism, as in blind allegiance and mindless following, I'll give you positivism. I am positive that I want to avoid trying to take that joint away from that non-starch (possibly rabid, definitely hungry) dieter.
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Joined: Apr 2002
Posts: 2,485
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2002
Posts: 2,485 |
>> I noted that Billy has been a member since July and has made a number of posts, so I would think of >> him as something other than a newbie. yeah, I shouldn't call him a newbie ! :-) sorry billy >> What I understand about language is that your use of "But" discounted the previous statement. hmm thats an interesting way of interpreting things. I shouldn't use the word "but" so casually ~~~~ My Blog ~~~~"Thy food shall be thy remedy." - Hippocrates, 500 BC
what I can eat on the diet (click here) -- my blog -- contact me (PM is broken) "Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
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