Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group DOES ANY ONE ELSE HAVE THIS???????

Hello all, it has been awhile since i have posted anything.. but any how, i was wondering if any one else was having any tingling in their arms and legs? This gets espicially worse in the night time..some times in my sleep i start to jerk and my body just feels like it is going crazy or something, this is hard to explain!!! so maybe if anyone el..se is doing this or knows how to get it to stop please let me know.. I take lorcet 10mg about 3xday and muscle relaxers when needed(this doesn't even stop it) lexapro for depression and humira once a week. any help will be greatly appreciated.
thanx all- love tina

HI, Tina

am not sure is that same with me but i feel something like electric shock, and hole body goes feel that jerk and it happen while am half sleep or sometime in while sleeping.
but still dont no why it happen.

heya tina, im going thru the very same thing but my doc put me on 10mg of valium 3x's a day which helps with the spasms sounds like your pinching a nerve my c1&c2 are fused so the only time i flop around like a fish outa water is when i push my self to far. and ive been refered to a neurologist for this and tremors and my sleeping for 24-48hrs at a time. talk to your GP and your rheumy about this tell them the meds aint working...........oak

Hey Tina,

I have that problem with my arms. They tingle then go numb. I currently am not on anything because of being pregnant, but I know exactly what you're talking about. My Dr's told me it was because neck had started the fusion process and every once-in-a-while it would catch some nerves and the tingling/numbness is the end result. When it does it with me, it can be in the middle of the day or at night, or just basically whenever it feels like it. I have yet to find a way to make it stop. I just hope it only lasts for 2 hours instead of 2 days.
I know this doesn't really help you, but I wanted you to know you aren't alone in this one!

Hey u all thanx alot for taking time to share this info with me, just kinda glad to know that i'm not alone (GOING CRAZY) people could not even begin to imagine the pain that ones body is capable of until they live with something like this...
love --tina

I started to get ticks on an anti- inflammatory drug, I stopped it..Thank god...and everything went back to normal. The nsaid I'm taking now doesn't do that to me. You should probably consult pro advice... good luck..

I've had problems with that electric shock feeling and jerking. About a year and a half ago, it got really bad. Every time I'd start to fall asleep, I'd jerk awake so I was only getting a few hours of sleep a night, despite spending 8 or 9 hours in bed. I felt awful, tired all the time and cognitively impaired from lack of sleep.

A friend suggested I try supplementing with iron and I figured it wouldn't hurt to try. I got some gentle iron, the kind which is less likely to cause GI problems. The first day I took the iron, I slept 9 hours straight. I'm still taking the iron. I tried eliminating it a couple of months ago and the jerking came back.

I know that iron is the first line of treatment for restless legs syndrome. Although what I had wasn't exactly restless legs, it seems like a distant cousin.

I just thought I'd mention the iron as it is easy and fairly safe to try.

Karen