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Joined: Nov 2007
Posts: 182
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First_Degree_AS_Kicker
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First_Degree_AS_Kicker
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Joined: Nov 2007
Posts: 182
Quote:

~ how do you know how much damage has been done & how the disease has progressed? is this possible without xrays & mri? Can it be figured out by symptoms?




Well, I'm sure over time if you are so stiff you can't move a finger that will tell you how much it has progressed

But xrays will tell you exactly how much damage has been done and possibly how fast your AS is working. I had my xrays last December. I had signs of fusion in my hips so that's when my rheumy started thinking AS. I will go in for more xrays next month and can't wait! I want to see what's going on in there!

Joined: Nov 2001
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Hi Trudy, that's a beautiful photo of you and your family.

X-rays will show where damage has already occurred, but even better is a nuclear bone scan, which will light up in pretty much every spot there's inflammation in your body. MRI is also very good. The reason I suggest those two over x-rays is that x-rays only show damage after it's occurred, whereas the other two will show you damage in progress (sort of).

It could be figured out by symptoms, but not conclusively or as quickly.

If you need a cane, get one. There is no age minimum on this. I've been using a cane on and off since I was 37. Some days, you just need one. It will make it much easier for you to get around on those days when your body just can't support itself properly.

Just find yourself a couple of truly funky ones that suit your personality.

You are in flare right now and must take care of yourself. Since short walks and working around the house are exhausting for you, you shouldn't push yourself from an exercise standpoint. If nothing else, you need to be doing stretching exercises to help keep you mobile. Listen to your body. If a particular spot is hurting, don't push it, just gently stretch it. Work up slowly to an exercise routine. If need be, stretch for one minute at a time, 15 times a day. Gradually increase the amount of time you stretch in one go until you can stretch out for 15 minutes at a time. Take your time about this and, again, listen to your body.

Once you can stretch for 15 mintues in one shot, then it's time to start adding some cardio. Again, one minute at a time 15 times a day if that's what you have to do. And slowly work that up to 15 minutes at one shot.

Once you can stretch for 15 minutes and do cardio for 15 minutes, that's when you want to add weight training. Same routine. Your body will tell you what you can do on any given day.

I recommend an aquafit program as well. In warm water. But again, a full class might be something you want to work up to slowly.

Whether or not you should be doing more is completely up to you. I tend to push myself, which has the benefit of keeping me moving, but the drawback of exhausting me sometimes. Only you know what is right for you.

Hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Nov 2007
Posts: 1,763
trudi Offline OP
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Nov 2007
Posts: 1,763
thanks! We've been having some good talks with DH & the older girls about these days & that I need more help and less attitude. DH (being a retired Marine) tends to put a lot of pressure on us to keep the house ship-shape!! So hopefully now he'll pitch in & help with his hands instead of his mouth!!!

I had bone scans that showed increased activity in my pelvis when I had stress fractured my pelvis in boot camp. I'm hoping to get similar testing done now to see what has changed. Again, praying for the VA to work better with me!


~ Trudi: homeschooling mom to 6: 16,14,11,9,7, 6 mos


Joined: Mar 2005
Posts: 1,538
Gold_AS_Kicker
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Gold_AS_Kicker
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What a beautiful family you have!


Janet

Joined: Mar 2002
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Great family picture Trudi, thanks for sharing.

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
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