Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group My Last Post

Dark and cynical is good. In fact without dark and/or cynical about 75% of my best material is gone.

As for the boogers on the computer, I spent two years doing late night feedings while posting here and spilt enough formula on the keyboard and computer to believe that they can handle that possible onslaught.

I hope you reconsider leaving the board. Everyone has something worthwhile to contribute.

I regret the ones I post when I ben drinkin.

HA~ HA!! I'm noticing that problem too....

Time....the essense here is time....I hear you, I've posted and then a half hour later checked in to see replies....

and I forget that I'm in New York and that England and California and India are on different schedules....my point is that don't give up on KA, our members are worldwide and you may receive a very important follow up to your post, with great information, weeks after you first posted!

I've been here since the late 90's, off and on and on again, and give great credit to KA's creators and managers and regulars, without whom I'd be lost. Remember that even though you may not get immediate replies, people are reading your posts, they just may not have time right then to answer...but you will find friends here, from all over the globe.

Peace, keep posting
Linc

Hi ilbcrzn,

The first post I ever made at Kickas only had one reply. Posts can be hit or miss sometimes, I read the topic and have never used Remicade and figured you were looking for help on the topic of which I would be no help since I have never used a biological.

Hope you decide to stick around. Sometimes we need a post like yours here to remind everyone to take a second to decide to take time out of busy schedule to post a reply or not. Like Brad said... 4-5 months ago I estimate there was a similar post giving us a reminder.

Take care and best to you,

Tim

I want to welcome you and tell you that I am sorry that I have not been here to support you. I am a long time forum member but there are times that go on for weeks at a time that I just can't sit here and also times that my RA fingers just don't want me to type.

I do understand how you feel. Early in my time here, I was so hurt when I posted a post that was very important to me and I hardly had a response and I thought that I just would never fit it. Since then, I have learned that every one else is just like me (can't be here all of the time, can't physically answer even though you read, care and pray for these people). Other times I have been just totally overwhelmed about the responses I have gotten.

I just want to encourage you to hang around, come here as often as possible and do what you can to develop close friendships with PM's, etc. I have met so many great people here who really walk beside me through my struggles. This forum is literally my lifeline at times when I can't walk or get out of the house.

I am looking forward to getting to know you better and to learn from you and to share what I have learned through 50+ years of fighting this disease and autoimmune diseases and Dystonia. I certainly don't claim to be an expert at any of it but I have lived through a lot (thankfully I have lived through it) .

I hope you are having a good time now. I have to admit that I have not read all of these posts in this thread yet. I haven't gotten to sit here that long.

Happy Holidays and may the New Year be fully of blessings.

Possi

Hey you, don't be like that. We'ze just people too. I don't come here looking for any particular response, just information and other people like me, so I don't feel like such a freak. This is where I come to be "normal". And guess what, normal people don't always act the way you want them to.

Imagine being in a comfortable living room with all your friends. Sometimes you feel like talking and sometimes you don't. Sometimes you can "be there" for your friends and sometimes you are distracted, preoccupied, bored in general or asleep. It really doesn't matter because at least you are there for each other, if only in spirit rather than deed.

I typically don't respond to any posts about drugs 'cause I don't know anything about them. I only pipe in when there is something I can relate too.

So, don't feel sheepish about coming back. You know that often the best, most lasting friendships start out with a simple misunderstanding, which ends up binding us together for life (in the most positive way). Here's a cup of hot cocoa for you, with those little marshmallows you like so much. Doesn't that feel better?

All the best to you wherever you are!

I am just going to do a blanket THANK YOU to everyone. I read everyone's responses (even though I said I wasn't coming back here any time soon). I have never experienced severe depression before (mild maybe). Didn't recoginize it, didn't know what it was. I really don't know why I pinned the number of responses I got to whether I was going to be happy or not. I was already severely depressed before I logged in and just didn't know it at the time.. I know how things go on the internet but for some reason I fixated on this irrational thought in the state I was in. I really never had a bout of of extreme depression before and usually do a pretty good job of keeping my emotions under wraps. I never once, even in my extreme depressed state thought anyone here didn't care, but for some reason, as you can tell by my post, I had to blame myself. My plan at the time was to leave this site, pretend I didn't have AS and get on with my life(sounded logical to me at the time). I really thought I was past the denial stage but I guess I wasn't. I really am kind of embaressed by the whole thing and wish I had used better judgement and not have posted in such a state of mind. I really hope you can tell by my previous posts that I am not an attention seeker or so self-centered that I would demand the attention of people who are trying to deal with their own life with this disease. I am actually feeling pretty good right now all the way around. In the future if I am such a demented state( I hope not!!) I will surly step away from the computer and wait for sanity to prevail.

In the future, please don't feel obligated to post to my stuff in fear I might go off the deep end.

Thank you all for being here. This IS a great site with a whole lot of great people. I have always known that and never doubted it!!