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Joined: Feb 2009
Posts: 702 Likes: 1
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Feb 2009
Posts: 702 Likes: 1 |
Hi Joana,
Remicade kicked in for me after the 6 week mark. Worked for nearly a year, then went on Humira and Enbrel, but they haven't done anything, so using Lyrica to keep the pain under control.
All the best,
James
I ache, therefore I am
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Joined: Mar 2009
Posts: 36
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OP
Member
Joined: Mar 2009
Posts: 36 |
Dear Possi,
I can see hat you have been trough a lot. And still you re so sweet and full of positivity! I really hope that with or without biologics you can achieve quality of life without pain. Im on day 5 on remicade and still haven fel no effect, but I hope that more infusions will make he difference.
I will keep you updated!
Thank you for you kind and wonderfull support.
WHAT DOESNT KILL YOU, MAKES YOU STRONGER 
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Joined: Mar 2009
Posts: 36
Member
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OP
Member
Joined: Mar 2009
Posts: 36 |
Hi Lisa,
I feel that we are going on remicade journey together!
Im glad that you felt at least some days wihout inflamation. Im still waiting for that feeling to appear. I really hope that you will feel total relieve after dose 2 on friday. Ill have dose 2 on 12/May.
I ll be wishing and hoping that both of us will be 2 sucsess cases of remicade power:))
keep me updated!
Best wishes.
joana
WHAT DOESNT KILL YOU, MAKES YOU STRONGER
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Joined: Sep 2008
Posts: 745
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Sep 2008
Posts: 745 |
Hello and welcome. Glad you made it here. I am with Possi. They didn't help me. But give them a real try. The wonderful stories I read about makes me so happy. It does take a while. From what I have read the Remicade a little longer because it takes time to build up. Stick with it and don't get discouraged.
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Hi Joana,.. and welcome to KA!
I am one of the very lucky ones that noticed a huge decrease in pain, only 4 days after my very first infusion. Past that, things improved even further, gradually and steadily getting better and better for approximately the next 6 months to a year. My AS is classic and long-standing (29 yrs) but the last four and a half years on Remicade has improved my life beyond what words can describe!!
Try not to worry and give this treatment some time to take effect. I hope you have great results too!
I hope you are enjoying KA!
mig
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi Joana, I am another who had immediate results with Remicade - starting during my very first infusion. I've been on it for almost 4 years now and while its effects are starting to diminish somewhat, I'm still in much better shape than I was before Remicade. They say that the biologics can take up to 6 months to really start working for some people. Many don't really see serious results until the 'booster infusions' are over - the first three at weeks 0, 2 and 6 that help build up the med in your system.
If you don't see any negative effects, I would give it a good try.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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