Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; Low dose immunotherapy- 10 days after treatment

I feel comfortable enough now to report my findings. I have been seeing Dr. Shrader in Santa Fe. He is an immunologist.I had the test dosing done in early May where I found out how I react to Klebsiella and I found out I was allergic to wheat.

June 1 I did the first treatment. It involves a small injection of Klebsiella (dead form) along with beta-glucuronidase. I will call this BG for easy reference. It is given to stimulate the suppressor T cells in the body to help the immune system properly respond to an agent such as Klebsiella. I also received a concoction of about 25 different foods along with the BG agent to desensitize my reaction to various foods.

First two days I felt like hell. This is supposed a good sign. Everything ached and I felt like I had the flu. But then when it lifted I started feeling normal. right now I feel perfectly fine. Before I always felt like I had a low level flul, felt weak and very tired. And this was on the NSD. AS is diminished greatly. I am eating a no gluten diet and limited dairy but plenty of starches. NO problems!!!!

The encouraging thing is the doctor told me the first shot is almost a test dose. It's a "homeopathic" dose to see how I do. The second and third treatment is where most everything happens.

Right now my body has normalized to food quite well which I realize is a seperate yet connected issue to my AS. I am improved about 60 percent with my AS. the thoracic spine still has some ache to it but at times it feels normal.

I havent had a response to treatment like this since I first started enbrel, which has since stopped working.

the plan is a shot every two months for a year i think then every 6 months then yearly only if necessary.

I am very exciting. there is a lot more to this treatment. You cant take most medicines for a period around the shot and you have to follow a very strict diet for three days surrounding the shot/treatment. I just fasted for the three days.

This is fascinating, finnari. Thanks for updating. Let us know how things go after the next injection.

this IS fascinating! im curious about the food concoction as well. did you get that for the foods that trigger AS symptoms? or allergy?
i think id crap myself if i felt 60% better. seems out of reach right now.
good for you! keep us posted

It's just a mixture of 25 foods that they use. The truth is who knows what you're reacting to? So they put a broad spectrum of foods in there to get your body to accept. It's a process but I have no doubt it works just by the way I feel. And to be able to eat more foods is awsome. Since I'm allergic to wheat I am eating a non gluten diet. In theory as I receive this treatment over time I will overcome my wheat allergy but since I just started i am staying away from wheat.

Actually, I think avoiding wheat is one of the bright sides of the LSD/NSD diet efforts. Evidence is building that gluten and wheat germ agglutinin lectins are bad for long-term health, so even if my over-sensitivity to starch gets cured someday I will still try to limit wheat to special occasions. Same goes for beans, especially ones that haven't been traditionally prepared with lots of soaking etc.

Being able to eat "normally" for just a day on holidays without causing a flare would be quite sensational though!

Well a case can be made that most foods are bad for you. Dairy is toxic on the whole. The meat industry is probably the worst with their handling of animals and diseases in line production.

LDA therapy can overcome almost all food allergies but it cannot overcome gluten intolerance. I am waiting to get back my gluten tolerance blood work I had last week. Eventually I would like to get to the point where I can eat a balanced diet again.

The bottom line for me is NSD does not work enough for me. It improved me ever so slightly but to make that kind of sacrfice for so little results? I'm grateful for trying and I think it's legit but it isnt enough. I suspect it doesnt do enough to overcome the mimicry involved in AS. But I did learn a ton about foods and it led me to LDA therapy.

Hi Finnari, glad to hear of your success so far...very promising!

I have to say about your comment above....you haven't been on the NSD for very long and for most people it is a gradual process. It's really more of a long term treatment...I think it took over 2 years before Jon felt he had reached remission or close to it. And from your posts recently it did sound like you were making progress. So I don't know if it's fair to say the NSD doesn't work enough for you....perhaps more that it didn't work fast enough for you?

And quite frankly I don't blame you for packing it in....like you say all that sacrifice for little results so far. Jon would be so jealous right now If only we could get the same treatment over here.

Good you you and I hope the treatment is successful and lasting

Can you let us know about the cost? Thanks for keeping us updated. Interesting indeed. There are so many gluten-free items popping up in stores recently. Cake and brownie mixes etc. To go from NSD to just gluten free would be....(sniffles, wipes a tear)....amazing. lol!!!!

I've been gluten free for about 20 years - it's very easy and getting easier all the time.

Yea I'm not waiting 2 years for something to work. Who's to say it's going to work in two years? Besides the diet made me feel overall weaker. I could tell when I was working out my energy level sucked. Did I feel better then when i started? Yes but not enough to live a quality life.

Initial testing, consultation around 700 dollars. treatment was 260.00. My insurance starts paying 60 percent of out of state costs after I spend 750