Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Jaw involvement

hey jeffery,

here it is: that thread about tmj with lots of good advice from others. and it was me who started it! LOL, you'd think i'd had remembered for sure a thread i started

https://www.kickas.org/ubbthreads/ubbthre...1938#Post371938

Jeffery..lol you wicked, wicked little man..lol

You are SO going to get a rumor started..lol (I love it!)

Actually the Dr. thinks the pool is what gave me the sinus infection...water up the nose and in the ears so looks like ear plugs from now on..yipee! as if Im not already deaf enough.

Yes the crohns isn't fun, and I dont know 100% its crohns but have all the symptoms and steroids call it down, along with promethazene (nausea) that is almost the worst part almost like morning sickness again (3 times was enough for me..lol) but yea if it goes to long the AL thing sets in and THATS not fun at all...

You don't realize how good the Remi is working until you can't get one..it starts about a week after the 4th week mark then goes downhill from there.

The insurance lady DID call today and tell me they think the one Remi in 12/09 is getting paid, and she said they have all this year to collect the second one my last visit in March, so she said she is trying to push it all thru to clear the $17,000 balance so I can schedule my next one.

The sad thing is this being almost the 4th month even if I get to start back at every 4 weeks like Im suppose to it will take at LEAST 3 or 4 treatments just to get me back to being good but hey I will take it as long as I know it's coming.

Sorry, wasn't trying to tell ya my life story..lol can you tell Im sick, on drugs, have insomnia, its almost 2 in the morning and no one is up but me and the cat..lol sheesh I need to get a life..or some sleep..lol

Oh by the way did you see where I live now, changed it awhile back so far i dont think anyone has noticed..lol

i noticed the other day. cracked me up big time!

sorry about the crohn's symptoms too.

Thank you Darlin!

Yea could be IBS not sure but when Pred calms it you know it is most likely one of the two either way it isn't fun.

Yea, so far Alan hasn't noticed it either that or he is scared Im getting too close to where he lives..lol

i read recently that even if AS and other spondy patients don't have crohn's, they often have crohn's-like lesions (ulcers) in their intestines. and i've seen so many people here with IBS symptoms (not everyone, but a lot) if not IBD, so what i read kind of made sense to me. so long as it gets calmed down with the drugs, just need to get you back on the remi soon!

wonder if alan has figured out your new address yet! chuckle chuckle!

Hey Lisa, a few of us have gotten together and decided to throw you a baby shower, are you registered anywhere yet? If not, we can get you registered girl! What kind of cake do you want? I thought I'd make my famous chicken salad...and we'll have balloons, lots of balloons....it's going to be great!!!

OMG you are SO funny!..lol

MONEY, all MONEY..lol you know for the baby..lol

Baby needs a new pair of keds..lol

Hey but I wouldn't mind a party, maybe a stop feeling like crap party..lol AND I would LOVE some of your chicken salad.

For me you are describing how my jaw felt about 15 years ago. Whwen my neck became very involved so did my jaw. Its not so bad now although still have lots of clicking (TMJ) and mouth clearly doesn't ope n as wide as it used to but that's ok cause it gives me one more reason not to talk too much. So long as I stick to small words I don't have a problem speaking.

I had a lot of jaw pain years ago. My dentist made up a night guard for me to wear at night. I always woke up to find it somewhere in the bedding. I gave up of it and the pain just went away by itself.

Donna

Baby needs a new pair of Keds, huh?!