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Sep 12th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
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OP
Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
there are many. i shall name but one.
what i wouldn't give to sleep flat on my stomach for a night.
Hmmmmmmm flat
did you ever see the "elephant man" movie with John Hurt
his dream was to sleep lying down.he could not sleep this way because the weight of his head would suffocate him.poor man.
there is ALWAYS someone worse off than yourself.
Last edited by saltire; 07/17/10 07:39 PM.
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Joined: Aug 2007
Posts: 1,489
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Aug 2007
Posts: 1,489 |
Being able to stay up past ten! LOL! Touching my toes. It would be nice to be able to work out more. Lift something without something hurting.
Craig
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Joined: Apr 2010
Posts: 716
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Apr 2010
Posts: 716 |
I miss riding my road bike in comfort. The posture is a little uncomfortable now, but I'm working on it with stretching. I'm not ready to give up trying.
John
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Joined: May 2010
Posts: 4
New_Member
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New_Member
Joined: May 2010
Posts: 4 |
Running!! I wish I could have that endorphin rush after a long run that makes you feel like superman.
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Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
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OP
Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
Running!! I wish I could have that endorphin rush after a long run that makes you feel like superman. oh,your 1st post.welcome:)
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
imiss feeling free and not in a full body straight-jacket.
AS & Fibro. NSD + no sugar
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Joined: Jul 2001
Posts: 4,728
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jul 2001
Posts: 4,728 |
There's a smooth and gentle rolleroaster called Air in a theme park fairly close to us called Alton Towers. Jeanna and I agree that there's about a second and a half of comfort during that ride the like of which neither of us have experienced for 15 to 20 years. Something to do with the G-forces in a particular corner combined with the angle of the seat at that point.
What we miss is comfort, just any one moment of being properly comfortable in a day, or better by far, a fully comfortable day such as we no longer remember. My old catch phrase was always "As long as I'm not sitting, standing or laying down, I'm fine!"
cheers,
Loz - Life isn't always a matter of holding good cards, but sometimes of playing a poor hand well.
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
I miss working
I miss my patients and helping them recover
I miss my life as it used to be
I miss swimming
I miss hiking all day on a crisp autum day
I miss snowmobiling after a big snow
I miss laying on my side and hugging my hubby
I miss the things I had planned for retirement
I miss my hubby
" That which does not kill me only makes me stronger"
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
There is so much to miss. I miss enjoying a long drive in the car without being in pain. I miss getting alot done on the weekend but don't because I need to rest. I miss not being able to plan things so easily. I miss not having pain effect my mood or energy levels.
I am thankful for all that I can do or all the things I take on despite having AS.
I miss my wife
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Jun 2009
Posts: 205
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Jun 2009
Posts: 205 |
I miss being able to sneeze without having a shock of pain like someone stabbing you in the back.
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