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Joined: Feb 2006
Posts: 1,483
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Feb 2006
Posts: 1,483 |
best of luck
your immune system must be all over the map right now. I hope the effect is lasting for you and not just a temporary thing as the system is tweaked so to speak.
No families take so little medicine as those of doctors, except those of apothecaries.
Oliver Wendell Holmes
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Joined: Jun 2007
Posts: 531
Veteran_AS_Kicker
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OP
Veteran_AS_Kicker
Joined: Jun 2007
Posts: 531 |
I would imagine my immune system is finally starting to work like it's supposed to. That's what's great about this therapy. If it works it's going to the root of the matter.
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
when i was told i hafd to be gluten free i was so upset.. but now ,as you said donette, compared to NSD..... uhh no comparison!
AS & Fibro. NSD + no sugar
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Joined: Jun 2006
Posts: 1,873
Lieutenant_AS_Kicker
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Lieutenant_AS_Kicker
Joined: Jun 2006
Posts: 1,873 |
you went to Santa Fe from Phoenix? wow . . .
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Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839 |
i hope this treatment will balance your immune system. i am sure a lot of us who read this are considering this option too if will prove reliable on the long term (even if we keep it for ourselves  ) Please keep us updated !
34. Some rheumys say AS stage 1-2 some others say USpA Also UC - rectocolitis. UC curently in remission since feb 2011. AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now... Modified NSD/SCD. Cook your own ! ____________________________________________________________ Mesalazine-Salofalk 500 mg/day And the list of my medication has become verry short after some years on this diet
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Joined: Sep 2007
Posts: 608
Master_Sergeant_AS_Kicker
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Master_Sergeant_AS_Kicker
Joined: Sep 2007
Posts: 608 |
Hi finnari,
I'm still confused! Does everyone get the same injection - ?heat killed Klebsiella bacteria with BG - or is the ligand tailored to the individual?
ditto re 25 food concoction.
Are are required to abandon NSD in order to get benefits from the procedure or can you stick with NSD / LSD if you wish?
Regards David
Dx Oct 2006 B27+ undifferentiated spondlyarthropathy (uSpA) with mild sebhorrhoeic dermatitis and mild Inflammatory Bowel Disease (IBD) controlled by NSD since 2007.
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Joined: Jun 2007
Posts: 531
Veteran_AS_Kicker
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OP
Veteran_AS_Kicker
Joined: Jun 2007
Posts: 531 |
Hi David:
For AS yes he gives you Klebsiella because his research based on Enbringer model. He also is considering another bacteria if this doesnt work fully, it starts with a Y and has been found to be higher in those with AS.
Not sure but I think the 25 food concoction is the standard first tx.
You are not at all required to abandon the NSD, although he didnt really know about it he told me "it makes sense". But the gal who does the injections says eventually after 2nd or third tx. I must start eating more foods to get desensitized to them.
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Thanks so much for sharing your experience with us Finnari.
This is the most fascinating and plausible treatment I have heard about to date, if I'm honest.
I too, think that wheat is my main enemy. This is only based on my own "experiments" but then, who knows your body better than you do - especially when you are following a restrictive diet that tunes you in to you body's reactions to what you are eating.
I'll be very interested to see how your treatment progresses. Has anyone posted on this treatment before? If so, I must have missed it because I had no idea it existed.
Take care and I hope this is a great success for you.
Last edited by Tinkerbell; 06/11/10 08:02 PM.
KickAS and help others do the same!
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Joined: Jan 2010
Posts: 69
Active_Member
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Active_Member
Joined: Jan 2010
Posts: 69 |
This treatment sounds really great. Best of luck and keep us posted.
My strenght comes from my pain!
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Tiago, You know I don't mean that your treatment doesn't sound plausible, right? I am totally intrigued to find out how yours goes, I have not read up on it yet - but am very interested to know a bit more of the theory behind it. Take care, Tink 
KickAS and help others do the same!
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