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Joined: Mar 2010
Posts: 51
Active_Member
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OP
Active_Member
Joined: Mar 2010
Posts: 51 |
i cant believe i went back to this guy but most of you know about getting treated badly by a pain management doctor. anyhow the last time he said that he didnt believe i had AS and didnt know where i got that diagnosis but i got my medical records from my rhuemy and he looked through it and had the nerve to tell me that he didnt see anything in my records that would justify him giving me any pain meds!!!! he told me " i dont know why you came back" i almost lost it and stood up and in a loud voice(i tried really hard not to yell) told him "because you said you needed proof and there it IS!!! he said "well i looked over it and dont see anything" by this time i was so mad i was shaking and then i told him i had bone spurs on my spine and he said that he wanted to see my xrays. and i thought i can get em but YOU wont see them cause i aint coming back to you!! and even if he didnt he'd probably say that wasnt enough then id be going to jail!! well im gonna give it one more try(at another pain clinic) then i get im out of options!! all i want is to be out of pain as much as possible thats all. if there was a super-aspirin i would take them and be done!! jeez well im done whining now,thanks for being patient while i blew off some steam! Jeff
AS is a pain in the neck, a pain in the butt, a pain in..............
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
i'm really not sure why sometimes people question us as much as they do, as you said, all we want to do is minimize the pain and maximize our functioning. yes, please do try another doctor. i've been to 5 rheumatologists before i found one who could help me, 2 endocrinologists, several physiatrists, etc. and its not me shopping around as much as them saying they can't help me, either because they don't know what is wrong, or because they think what is wrong is beyond their ability to help, and sending me on my way. that's ok with me, better to be with some one who can and will help you, and especially someone who seems to want to as well. better luck with the next doctor! and everything we learn along the way makes us better patients as well, i believe. though i think the rheumatologist i just saw last week could have dx'ed me with a lot less data, for me, think all the years of being a patient, listening to and learning from all these various doctors, reading, coming here and becoming educated, helped me help him make the diagnosis of spondyloarthropathy an easy one; now just to figure out which kind.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2010
Posts: 2,105
Major_AS_Kicker
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Major_AS_Kicker
Joined: Jan 2010
Posts: 2,105 |
He treated you badly. You gave him the benefit of the doubt and provided him with more good information. He still treated you badly. Definitely time to find a new pain doc. Please don't give up just yet on finding one though.
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Hey Jeff,
Sorry to hear about the poor visit to the doctor, sounds like he is set in his ways.
Hopefully somehow you can get out of the pain by seeing someone else. Never hurts to vent here.
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
What a jerk.  If you want me to I'll come over there and Kick his AS for you.  You have got to get a real pain management doc that works with your GP and rheumy. Geez. I'm irritated just thinking about it. I'm so sorry. 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Jeff.
Now I have a feeling that this doctor doesn't realize how painful and debilitating AS (or any other arthritis) can be. I would ask your doctor to get referred to another pain management specialist now.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
He treated you badly. You gave him the benefit of the doubt and provided him with more good information. He still treated you badly. Definitely time to find a new pain doc. Please don't give up just yet on finding one though. Exactly....time to find another pain doc. There are some good ones out there.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Mar 2010
Posts: 51
Active_Member
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OP
Active_Member
Joined: Mar 2010
Posts: 51 |
im going to my regular doctor tomorrow and ask him if he will refer my to another pain clinic. it makes me so mad all i want to be is out of pain as much as possible. one day if i ride by the hospital and he is outside you know im gonna have to flip him off!!
AS is a pain in the neck, a pain in the butt, a pain in..............
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Jeff, what has happened to you is completely unacceptable. I'm so sorry to hear it!! It is beyond me how dismissive some medical so-called professionals can be of people who come to them for care. Definitely find yourself a new one.
Warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
Jeff, I am so sorry that he acted in such a stupid way. I don't understand why he is in the pain management business if he treats his patients like he treated you. You do need to let both your GP and Rheumy know what he did. I hope you find a better PM doc quickly.
Donna
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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