Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Not having a good day(s)

Oh Jeff, no, you are not having a good day. I can't believe that your mother could say something like that. Perhaps she is just wishful thinking because she does not want to face up to you being seriously ill. I am so sorry. As a mom, I know I couldn't ever say something like that.

I just don't understand why kids think it's OK to through pumpkins at Halloween. Those kids need an attitude adjustment. It's too bad that you don't know who did it.

I'm hoping and praying that you will feel better.
Donna

They've been destroying mailboxes the last few nights. If they keep it up, hopefully someone sees their tag number.

jeff,

sorry once again to hear things are still not so great.

as for those kids, we had teenagers going around the neighborhood, breaking into cars, stealing GPS's, eventually they start bragging, or get brazen and are less careful and usually do end up getting caught. in our neighborhood's case, it did catch up with them, kids from a neighborhood not too far away who knew one of our neighbors so knew our neighborhood i guess. i do hate seeing others damage the property of others, so totally disrespectful.

Aw Jeff, what an terrible way to end a miserable day. As far as your Mom is concerned, I think a sit down talk with your parent is a must. Sounds like she has some denial to work through. That comment is a hard one to swallow coming from someone so close.
Cindy

Jeff,
I am sorry that you are having such a horrible time. But I need to reiterate it is a MUST to get FMLA. Each time you go, it is going to count against you. With the FMLA you are protected. I THINK you may be able to get it to go back a little bit in time, from when you had the worst problems. Doctors fill it out, so they should know how to do it. Get your doctor to be as specific as possible. If you do this you may save your job, if not... then you know what might happen. I am not trying to scare you, it is the last thing you need right now. As we all know, stress doesnt cause the problem but it sure does exacerbate it! Get the FMLA asap!! You will feel such relief after it is done. If someone tells you not to get it, it is likely so that this is for the bosses benefit, not yours.

Please, get this done soon. Even with the little bit of this lessening your worries will help, at least in your own feelings.

Kirsty

I went back to the neuro today...he thinks the flare is mostly AS with some overlap from the MG. I was hoping he would prescribe the steroids, though, since the double vision just isn't going anywhere on its own and the flare is probably the worst I've ever had.

Unfortunately, he wants to stick to the schedule of having surgery as soon as possible. I was a little bit disappointed that I can't even walk and he wants me to have my chest opened. I really just want my condition to be managed now and then worry about whether I need that.

I ended up getting a steroid pack from my rheumy's office before going into work. I'm going to see about getting the FMLA since having autoimmune disease seems to take up so much time.

So you are taking the steroids now? If so, hope it helps quickly. Definitely get that FMLA paperwork started.

Autoimmune DOES take a lot of time...forever to get diagnosed, all the meds take weeks to work...and so on. So frustrating. I'd rather have strep or an ingrown toenail. At least those can get nearly instant relief.

Bunches of hugs on the comment from your mom. That sucks. As if you need more problems. Grrrr.

Just to let you all know...my mom did clarify her statement. She thinks that I'm having an arthritis flare...and its in my head that its affecting my muscles too. Well, at least its not all in my head anymore.

Just a quick update: The steroid doesn't seem to be doing much. Still 10/10 when I try to walk.

Unfortunately I told my boss I was being put on a steroid pack and should be better by Monday. He's upset because I told him I'd try to come in last week and then called in sick for a day and a half...I really can't predict how I'm going to feel 2 days in advance (let alone 12 hours in advance), but that is what he wants me to start doing.

I'm thinking I need to be on a full dose of steroid, at least until things start going better.

You said you'd TRY to come in and he's upset? Sorry you are having to deal with all this AND an irrational boss .

AND a seemingly unsympathetic mom, even if she clarified. Many hugs . Hope the steroid kicks in soon.