Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group New,and searching for advice.No Dx yet

[PDF]Spondyloarthritis research Consortium of Canada magnetic ...
FRCP(C), Millicent Stone, MRCP(UK): University of To- ronto, Ontario, Toronto, Canada. Address correspondence to Walter P. Maksymowych, ...

citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.126.9460... - Similar

Here's another one for you, Imaging for Spondyarthropathies - straight from Toronto: Inman, Stone et al. Interesting - andot what they say about contrast materials and time spent in the 'tube'... You can hear Dr Stone's voice throughout, she is sooo careful of her patients.

Thank you so much Molly for your information...but I can't seem to find it?
I copied and pasted the line in my addy line and it comes up as document not found?
Suggestions please as to how to locate it?
*hugs*

[PDF]Spondyloarthritis research Consortium of Canada magnetic ...
poorly with the Bath Ankylosing Spondylitis Disease Ac- tivity Index (BASDAI) (3 ,4). ... FRCP(C), Millicent Stone, MRCP(UK): University of To- ...

citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.126.9460...

Weird. I tried the posted link and got a 404 message as well, so, went to my search criteria and bingo - in fact have printed it out for myself. Search criteria: millicent stone FRCP - bath uk - up pops the title of the monograph as posted: Spondyloarthritis Research Consortium of Canada etc etc. Click on that, then download to yr files, print, whatever.

Hope you locate it - darn irritating. Hmmmmmm. It's a pdf file.

Hi Tracy
Just been catching up on your post and all the replies.
Everyone has already given fantastic advice, as usual.
Wanted to say hello and welcome you to the site.
It sounds like you have AS and if you do, this is the best place you could have found to help and support you outside what your doctor can do.
You seem to be coping really well, and with little one's to take care of too. You are really brave to be facing up to this and trying to get all the info you can to help yourself.
I wish you every success in getting a firm DX for your symptoms, and treatment which will bring you some relief, and help you get your active life back on track.
Take care,
Tink

yippee! Got it Molly!
Your a love ! *big hugs*

I tell ya, it sure is difficult sorting through the plethora of materials one can find while looking for the information that you need. And then interpreting it is yet another thing! lol

Oh, another quick tidbit. In the few moments when i DID get to chat with my doc (paper and questions in hand) I asked him regarding getting a full spinal mri.. he basically scoffed at me and that it was far too in detailed and time consuming..and when I asked about STIR imaging and the contrast enhanced mri his response was..

Stir... I've never heard of that.. and as for gladinolium.. we only use that when doing mri of the brain! ARGH... you are right.. I do need to just get me [*bleep*] to Toronto Western.... I will make sure to call the woman he uses to set these things up next week, to make sure it's being done!
Thanks for the strength and info Molly...and others... It just means so much.

Unfortunately this is all such a strain on my children as well... All 7 of them see me hunched over, moaning and groaning and I suppose they can't quite understand. Times like this having a partner, or close family member to lean on would be a godsend!!! *sighs*... None to be found..but who knows what the future will hold... right?

*smiles*

http://www.spondylitis.org/aboutus/march_april_2006.pdf

Here's another one for you, this time from the SAA, American Association. Interesting input, including a note on the fact that so many doctors 'still' refer to AS as being as 'man disease'! And that is still true. Sigh. More information needs to get out there.

OK. Have fun reading. Getting an early night, meeting with horses and horsy people tomorrow (Parreli type training day)...yippee.

Enjoy your early night ma Dear!
After all your advice to all, you certainly deserve it!
Have a SPOOKTACULAR day tomorrow!!!!

LOL Thank's so much Tink!
I so appreciate everyone being so kind and helpful. As you must know,this all has such huge ramifications on ones life and livelihood!
The work I do is considered mainly a "mans work" as it's heavy, yet I love it... but since the beginning of all of this, I feel horrible that I can barely function most days without the use of painkillers...Yup I said the P word! ha ha... I have run into a few people who seem so against it,and look at me as if I have a problem with meds rather than a genuine problem with my body.
And since as you've seen, I haven't yet been able to figure anything out well enough to find any other answers, it's painkillers to allow me to function so i can support the gaggle of children I am in need of raising! lol
It's either that or perhaps ask the government if they'd like to help? I'm sure they wouldn't be too quick to volunteer in any state or country.

Once again, thank you kindly for coming in to say a warm hello and give good wishes and words of wisdom.

Have a wonderful evening and take care

Tracy

Maddening - my PC is really playing up this evening. Gritted teeth now...

Anyways. Print off these two monographs I have sent you, make a copy for that clonking idiot of a doctor you've got, give it to him, with a 'sweet' smile. He really does need to go get retrained! Oh yes, and take a yellow highliter marker and mark up relevant passages; point up the text - that is what I always do. Saves em time in reading.

Now, get thee to Toronto, back to your own doctor - surely you don't need a referrel from this present dumb-cluck, do you? He is just bad news - but try to educate him (yr mission in life!! <LOL>)

Right. Night.

Tracy, the doc may have been referring to the rheumatology clinic at Toronto Western with that 'clinic' comment, it's pretty extensive. However, it is possible to get a referral direct to one of the doctors.

Keep on them about it, OK? Sometimes you have to be persistent.

Hugs,