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Joined: Mar 2010
Posts: 70
Active_Member
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OP
Active_Member
Joined: Mar 2010
Posts: 70 |
I wonder whether anyone else find that their legs get particularly cold? I've noticed recently that in the evenings they seem to get cold (though they don't necessarily feel cold to the touch)...another symptom, or am I just getting paranoid?
David
Suffering back, joint and, heel pain and stiffness; tiredness and lack of energy; red and warm joints; much clicking and cracking of joints etc. for four years. Current DX: fibromyalgia
Sometime music teacher and composer, PhD student
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Interesting that you mention this. I've considered taking a small blanket when we go out to eat or to a movie....if my legs get cold, they hurt. In fact, I've got a light blanket over my legs right now. Don't know if it's the AS, but wanted you to know someone else understands.  And it's not just in the winter, A/C can do it to me, too. I don't wear shorts in the summer as often now because of the A/C being so cold in lots of places.
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Mar 2010
Posts: 70
Active_Member
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OP
Active_Member
Joined: Mar 2010
Posts: 70 |
Interesting you say that too, because mine start as feeling cold, and then they begin to ache; now they're painful :-(
Suffering back, joint and, heel pain and stiffness; tiredness and lack of energy; red and warm joints; much clicking and cracking of joints etc. for four years. Current DX: fibromyalgia
Sometime music teacher and composer, PhD student
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
I am always covering my legs with my coat when we go to church. At home, I sit in my recliner with a throw covering my legs. As long as I am moving around, I'm fine. I just don't have the energy to keep moving.
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Jun 2006
Posts: 1,873
Lieutenant_AS_Kicker
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Lieutenant_AS_Kicker
Joined: Jun 2006
Posts: 1,873 |
Yup, mine do that a lot. When AS first hit me at age 10, it hit my left hip, and my left foot would be ice cold when the right was normal. My right leg even grew almost an inch longer than the left. And Cody says at night my legs and feet are freezing.
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Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
me too....is there no end to this fu**ing sh*t?
fu**ing bast**ding pis*ed off.double *uck this sh*te
goodnight and good luck ANDY MURRAY for Sunday morn
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Well, now I don't feel so weird.  In very good company with fellow spondies. 
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi David,
Sometimes my legs get that way and my doc suspects a mild circulation problem. My posture probably has alot to do with that when sitting and laying down. My legs were also cold like that (alot) when I was taking biologics.
Right now I have one hot knee because I must have done something to it. Something doesn't feel right in there for the past couple months.
Take care,
James
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Same here David, joining the 'Yes, same here' line up! And like you James, sometimes have a real cooool cold right leg and freezing foot - right weird. Dr (back in UK) said circulation problem. Also have blue tops of toes, both feet, singularly odd looking.
Invariably have a rug over my knees, sit on top of storage heater (only form of heating in this house) with one leg draped over the radiator, and rug over the 'cold' side.
Even sometimes fill up a hottie. And, invariably wear a woolly head hugger, and thick socks...even in bed. V. 'beautiful' sight! <VBG>
So, not alone. All part and parcel of this amazing, invasive AS vile monster. Is there ANY part that it does not try to attack? (Nop, don't answer <LOL>)
MollyC1i - Riding OutAS
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