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Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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sounds like your family and you are having a good vacation! smile

how sweet of them to accompany you rainbow

hope this works wonders for you! fingers and toes crossed cheerleader



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #445087 06/16/11 03:17 AM
Joined: Apr 2009
Posts: 1,576
Donette Offline OP
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Joined: Apr 2009
Posts: 1,576
Came home on June 3rd. Today is June 15th and I am in an "I'd feel better if I were dead" flare. Ouch. This is normal, right? This is a good sign, right??

I read the book by Wade Lewis on Hormesis and it is so promising. It talks about how this therapy resets your glandular processes, which I found out arthritis is a glandular problem because we aren't pumping out the natural cortisone levels we should be. We know how good a cortisone shot feels (after the initial sting, lol) well they think this mine therapy gets your body pumping out cortisone again. YAY. This is an internal pep talk gone public. If you've joined me in my thinking out loud, thank you.

Joined: Oct 2008
Posts: 758
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: Oct 2008
Posts: 758
Yep, you're in the eye of the storm. Gets worse before it gets better again.

jroc #445214 06/18/11 03:49 AM
Joined: Jan 2006
Posts: 194
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First_Degree_AS_Kicker
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First_Degree_AS_Kicker
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Hi Donette!
Just had a premonition to check the board tonight after a long absence and low and behold - there you are. Hang in there girl! Let's see - three months since my last Montana visit. Today I got out of bed w/no trouble (that used to be a major deal e o)drove all over creation,in and out of the car a lot, shopped at Costco, came home and did some planting, watered, mowed our new lawn and fertilized and weeded for about 3 hours. There you have it. Wasn't in my wildest dreams in my pre-radon dayz. It'll take a bit...keep a record and Keep patient! So proud of you for going again!
BTW - My 88 year old AS mom just went through major heart surgery. I really believe the only way she has survived it is because of the radon a few months ago. Still in the hospital but after two weeks she is getting better everyday.


If you ever drop your keys into a pool of lava, forget about them, cuz man, they're gone.

- Jack Handey.

.......................................

http://h20girladventures.blogspot.com

Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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heart hope you start feeling better real soon! hugss



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
jroc #445305 06/20/11 12:15 AM
Joined: Apr 2009
Posts: 1,576
Donette Offline OP
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576
And how are you feeling?

Joined: Apr 2009
Posts: 1,576
Donette Offline OP
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576
Thank you! You give me hope. Still swollen hands and feet. Hobbling around feeding my family Father's Day Dinner. Man, being sick is so gosh darn inconvenient!!

Sue22 #445307 06/20/11 12:17 AM
Joined: Apr 2009
Posts: 1,576
Donette Offline OP
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Thanks Sue! How are you doing on the Paleo Diet?? Notice any difference?

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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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easy to do paleo in summer with so much variety in fresh fruits and veggies. eating lots of fish and seafood as well.

but i still don't see a connection between my arthritis and my diet. not saying it doesn't exist, just don't see it.

with that said, not doing too badly right now. hoping that doesn't change soon. had my blood drawn today. fingers crossed the liver is ok. if not, having to go off the flector patch, ldn, and/or zanaflex is not something i can envision being able to do, without something else to take their place. when i go much beyond the 12 hours of changing my flector patch i can feel it in my SI. my tendons are so much better on the ldn, haven't pulled anything significantly since i've been on it, the things i have torn a little, have healed in a week or so. and the zanaflex, i use it to be able to sleep, to be able to go through medical procedures, the dentist, etc. just hope i don't have to give them up.

i know you understand from your experience with drugs.

but we always find a way, right?

thanks for asking. smile

and hope you feel better soon. smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Oct 2008
Posts: 758
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: Oct 2008
Posts: 758
not too bad. busy conducting numerous dietary & lifestyle experiments as always so if and when something works i'm sure to have no idea what it was. managed to kick my celebrex habit.

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