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Joined: Jul 2011
Posts: 60
Active_Member
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OP
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Joined: Jul 2011
Posts: 60 |
I am going to see my rheumatologist tomorrow and will be starting on moxifloxacin. Besicall, he's said he'll support me in whatever I want to do. The study I read said 3 months, but that seems excessive. What is the recommnded course? 10 days?
Then, do you follow with anything (linke mino or flagyl?) and for how long?
Thanks guys.
Molly
~Fear and love cannot occupy the same space
HLA-B27 and loving it
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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
If you open up Dragonslayer's profile, find his email address and then send him a request for his "antibiotic protocol" then he'll send it to you.
I'm 8 days in on the moxi and pretty miserable. Wondering if moxi is enabling the candida. Eating next to nothing, bad diarhea, head to toe stiffness and pain. Patience is a virtue.
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Joined: Jul 2011
Posts: 60
Active_Member
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OP
Active_Member
Joined: Jul 2011
Posts: 60 |
Oh Donnette! I am so sorry you are feeling so miserable. I hope this passes soon and you start feeling much better. I am 2 days in on the Moxi. Hoping for the best. Fingers crossed.
Feel better.
Hugs.
Molly
~Fear and love cannot occupy the same space
HLA-B27 and loving it
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Joined: Nov 2008
Posts: 419
Black_Belt_AS_Kicker
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Black_Belt_AS_Kicker
Joined: Nov 2008
Posts: 419 |
The study I read was 3 months also. I would stay on it that long. Antibiotic therapy for arthritis is different than treating an accute infection. A short course may knock it out during the treatment, but it will most likely come back. Another resource is Roadback.org. It gives the protocol for minocycline or doxycline use, which can last years. Donnette - hate that you are reacting so bad, it might be die off reaction (herx), but i seem to remember reading Moxi can lead to c. diff (maybe all antibiotics can?). So please call your doctor about the diarrhea. Good Luck both of you, I meant to take the moxi study to my doc yesterday and forgot to even mention it. She's already done minocycline with me but I had an iritis flair and she pulled me off of it. mc
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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
mc, mino didn't help me at all. only made me dizzy. I think klebs is only "vulnerable" to certain families of antibiotics (moxifloxacin, ciprofloxacin etc). I am so bad hubby had to help me shower today. ahhhh, good times.  So I've done a little more research as to what helps kill candida and ....raw garlic, peppermint oil, oregano oil, coconut oil, caprilic acid, pau d arco and I read that vitamin C taken to bowel tolerance during antibiotic treatment helps minimize the chances of candida overgrowing. Just ate a green salad with chopped up raw garlic on it.......now fighting off the urge to scrub my tongue with an SOS pad. blehhhh. fyi: symtoms of systemic candida overgrowth, lethargy, pain, swollen stiff joints. hmmmmm. still honing my patience skillz. sighhhhhhhh. Thank goodness for solitaire on the computer, that is about all I can do by myself. argh.
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
I tried antibiotics this past year, really believing I would find one that would cure me. My sed rate just increased--doubled. I finally just gave them up a couple months ago, I really believe in the whole infectious cause for rheumatic diseases, but now I'm confused. I tried mino, clindamycin and zithromax. I would feel good for a few days and then iwould feel way worse after. I never got over the feeling bad part. I kept reading you'll feel bad before you get better, but after a year I was way worse and not functionaing/living the way I wanted to. So now I am doing the NSD -very strict version, but I feel less pain which is a good thing. I don't want to poo poo antibiotic regime for rheumatic diseases because I have seen a lot of people do so well on them over at roadback.org. I just think I'm one of the 20% it does not help, but I am grateful diet does help.
Hope you get releif, you must be feeling bad if you have to have your dear hubby help you shower.Hope you feel better real soon!!
Take care.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
I ended up taking the Moxi for 9 days and then stopping. I've had straight water diarrhea for 16 days now (took a round of clindamycin first) and I started feeling so weak and couldn't get enough water to drink, blood shot eyes, couldn't stand up, AS pain off the charts, no appetite. Kind of scary. So I ended it 3 days ago and the diarrhea problem is slowly improving with tons of probiotics and a little yogurt. Sighhhhhh.
How do my symptoms be so bad eating so very little. Had to force myself to eat a little lettuce and chicken. Frustrating, indeed.
I'm wondering if I need some chelation therapy. And I know I need to do the antibiotics in cycles and keep the candida at bay. Oh vey. It's all so much some times.
Thanks for the well wishes. You are sweet!
-Donette
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
I did some checking on chelation therapy and I saw the word "scam" written many, many times.
Timo
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
Donnette, Antibiotics make me feel like I went on a starch binge, so even if you were eating perfectly antibiotics can make you hurt like nothing else. Alinus just posted the same thing about abx making him feel awful just a few weeks ago. I think some of us are hypersensitive to abx. I feel so much better after being off them now, maybe they helped? maybe they didn't? but the nsd is working wonders for me. My sed rate was 53 in July/August, I hope when I get my labs back in a few weeks they will be at least be half of what they were.My pain has come down considerably, and usually when my pain comes down so do my numbers. Hope you get to the bottom of it, but maybe the abx are causing inflammation, it happened to me.
Take care!!
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Jul 2011
Posts: 60
Active_Member
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OP
Active_Member
Joined: Jul 2011
Posts: 60 |
Well I took the Avelox (moxi) for 2 weeks. No better but no worse either. I am thinking of trying the mino.
Donnette I hope you are doing so much better and I am so sorry for all of the discomfort and suffering you've been through with these antibiotics.
Sending you so much love and hopes for feeling better all around.
Hugs to all, and thanks for sharing your thoughts/experiences.
Molly
~Fear and love cannot occupy the same space
HLA-B27 and loving it
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