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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Ohoh - Four weeks ago had what seemed exactly like a horrible heart attack - had one in Dec 1997. Then, last Tuesday after coming back from seeing ophtho in Dijon, had another, then Wed, Thurs and Fri had bouts of the same. Phew. Like being kicked in the chest by a horse. Doctor told me to go to ER. Got myself there Fri evening and just back home this evening, Mon. They couldn't find anything heart. Asked IF poss anything to do wih AS - cardiologist opined, 'possibly'. Have checked it all out, and reckon, costo. Tell you, horrible. Was confined to bed with heart monitor... Rest was good for costo but not good for spine! Am stiff as a board and neck is killing me - and chest is aching. Can't wait to go to bed - my own bed. Feel desperate. 
MollyC1i - Riding OutAS
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Joined: Apr 2009
Posts: 1,595
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,595 |
Gentle  to you, Molly! Yes, indeed it is sharp and nasty and has many thinking it is their heart. When there's more chronic inflammation it makes us women suspect breast cancer...and why is costo always worse on the left???  Hope it's a short episode and you bounce back quickly.
Louise Happy to be a physio by day, not happy to be a Spondy 24/7! 
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Ohhh thanks Louise. It's orrible. Back feels very inflamed, chest is...insert fave description for costo!! Neck is just - Oh flip. Fri to Mon in bed aint good for sponsys - an I had orrible drips in me that they couldn't seem to get right (not kidding, three attempts!!) Didn't bring my LDN with me soooooooooo Then I had the stupidity to eat their soup - think it had potatoe and such in it. Not helping. Taking myself off to settee...bliss awaits me <LOL>
MollyC1i - Riding OutAS
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Joined: Sep 2009
Posts: 1,335 Likes: 4
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Sep 2009
Posts: 1,335 Likes: 4 |
Take care of yourself, Molly. Have had three bouts of Costochrondritis myself and know how much it feels like a heart attack. Sorry to hear of your sore back. 
- Carpal Tunnel in BOTH hands
- Depression (MDD) Major Depressive Disorder
- Pituitary Adenoma
- Scoliosis
- Spinal Arthritis with bone spurs on spine
- Multiple Scoliosis diagnosed
- Herniating spinal disc
- HLAB27+
- Final diagnosis: Mild lumbar spondylosis
Previously told Mechanical Back 'Issues'. Hate this term!
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Thanks magician - such a relief to know here at least people know what I'm on about...orrid ole AS
MollyC1i - Riding OutAS
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Joined: Oct 2007
Posts: 1,731 Likes: 1
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Oct 2007
Posts: 1,731 Likes: 1 |
I'm so very sorry to hear this!
I hope you feel better soon. Keep us posted!
______________________
Jan
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Joined: May 2011
Posts: 41
Member
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Member
Joined: May 2011
Posts: 41 |
Hi Molly - I hope you feel better soon. It's aweful what just a few days of lying on our backs can do to make us so stiff!!! But I'm glad it wasn't your heart. I hope you'll soon be able to move around and get more comfortable 
Bikram yoga, New to NSD, stretching
HLA-B27 Negative
"Life is not about waiting for the storms to pass. It's about learning how to dance in the rain."
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
hope you feel better soon! 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Oh Im so sorry Molly...I feel for you I have had it many times and I guess when I was a beginner in all of this I really thought it was my heart also..went thru the same things heart moniters, xrays, muscle relaxers ect..found the only thing that worked for me were the steroids (pred) if you have inflammation ANYWHERE the pred is going to help..in fact now when I feel something weird like could that be this or that I will take some pred just to see for me it seems to make all the difference if the pred isnt helping whatever it is within 24 hours then I know it is something else. Hope you can get it figured out and feeling better. Gentle Hugs!
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Thanks all you guys - am feeling a tad better, just dizzy now with the anti-hypertensive meds...brought BP too low! Can't win, innit? (Rhetorical...<LOL>)
A'mom - no, can't do pred. Two fronts: counter indicated for anyone with glaucoma, and, am highly reactive to the stuff - does a right nasty number on me. Sooooooooo, anti-inflam and pain killers I suppose! But LDN seems to be holding the main fort, so will stick it out. Costo can't last forever...errrrrrrmmmm!! Cross fingers <LOL>
MollyC1i - Riding OutAS
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