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Sep 12th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Nov 2011
Posts: 18
New_Member
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OP
New_Member
Joined: Nov 2011
Posts: 18 |
I'm in the hospital right now, they wanted to get things under control and me being in a central location lots of
dr. have access to me. They did a spinal tap to confirm but they are pretty sure. Anyone know a good place to go for info similar to this?
live life for today, not tomarrow, or yesterday
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
MS Associations and also check out www.lowdosenaltrexone.orgRotten Dx to be given - is this medication related? Positive vibes to you -
MollyC1i - Riding OutAS
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Joined: Aug 2007
Posts: 1,489
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Aug 2007
Posts: 1,489 |
I am sorry to hear of your MS diagnosis. Wishing you all the best. We are here for you.
Craig
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
Bummer, bummer, bummer. Check out the following: MS World - Good community MS Association of America - Good society National MS Society - The marketing center for big pharma --Greg
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: Dec 2010
Posts: 456
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Dec 2010
Posts: 456 |
I'm so sorry- life is just not fair sometimes. I don't know of any websites but can help with any therapy questions you may have. I am an Occupational Therapist.
Glad to hear you are in good hands in the hospital and hope each day gets a little easier.
Shari
Meds -Hizentra, leflunomide, Prednisone
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
mommyperks...I'm so sorry you're going through so much, I hope your doctors are able to get you on a good treatment plan and get things under control soon, big hugs... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
I am so sorry to hear this, I will pray for you and I hope you get better. I hope your symptoms get better. How is your pain? How is your numbness? Are you walking ok ?Did you have numbness in your legs for weeks or months before all this started or was it sudden? I know this must be really hard being a mother. I am a mother too and it takes all our time. Ask for help and don't be ashamed to ask for help, that is what family and friends are for. I hope the best for you.We are here if you need us.
Take care.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
MollyC1i - Riding OutAS
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Joined: Nov 2011
Posts: 18
New_Member
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OP
New_Member
Joined: Nov 2011
Posts: 18 |
Thanks everyone, the numbness started 3 weeks ago. I am walking like a drunk, lurching around which has hurt my back. I have been on Humira but they ordered me to stop. I would have done the injection yesterday.Pain is not to bad though. YET 
live life for today, not tomarrow, or yesterday
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Joined: Jul 2010
Posts: 1,191
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Jul 2010
Posts: 1,191 |
I just wanted to pass on an MS diet that had very good results in France. The French doctor's name is Dr. Jean Seignalet. I don't have a link but you can find different things about his diet and patient success by googling. Some cases are a 100%.
His diet is as follows:
1. Exclude animal milks 2. Exclude modern grains, he said a few are acceptable such as rice & quinoa 3. Avoid products cooked over 110 C and processed foods 4. Use virgin oil 5. Consume organic produce
I know it sounds extreme, but I couldn't help give you the info, do with it what you will. Hope this all goes away for you soon,take care.
Diet change has improved my RA. I feel best eating raw veggies and some fruits and avoiding grains, sugars, nightshades, beans and dairy. Sed rate dropped from 65 to 19, but it took over a year. www.fatsickandnearlydead.com excess fat/oils = pain for me recipes for raw food on Youtube "raw food romance" and "healing josephine" Josephine is in remission from RA after two years by change diet/exercise
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