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Joined: Apr 2009
Posts: 96
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Apr 2009
Posts: 96 |
Any peeps with both Ank Spond and small fiber neuropathy? thanks
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Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Dec 2003
Posts: 1,368 |
Hi
I have had it for twenty years. It is the most horrific pain I have ever had. Without lots of meds my skin burns all over. It feels like I am on fire . I take Amitriptyline, Effexor and Neurontin to control the pain.
This has caused me far more disability then the A/S has.
Janet
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Have had in feet - erythromelalgia. Wretched pain. I did contrast foot baths. TG not had like that in a time, but do get like pins/needles in feet, especially right foot (happening right now). Think that is PAD or claudication. Need to find a decent vascular/neurologist/cardiologist - like looking for teeth in chickens over here !
MollyC1i - Riding OutAS
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
I had neuropathy diagnosed, had it for short period of couple of months. All my extremities (hands and feet) were cold and tingly sensations.
Unsure if the same as "small fiber neuropathy".
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Apr 2009
Posts: 96
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Apr 2009
Posts: 96 |
Thanks tim that sounds very similar.
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Joined: Apr 2013
Posts: 372 Likes: 1
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Apr 2013
Posts: 372 Likes: 1 |
Tim - have you ever had the sensation in the thigh area? With the whisking in and out and so much going on at the doctor's office (county clinic), I have reported this but...no suggested diagnosis. I have had it in my forearms as well. It's deep, quick and can stop you in your tracks it hurts so bad. I just read up on it on the NIH site and it is a cookie cutter (with my feet) of what I have been experiences for several years. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/
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