I'm with you! Pain is my constant companion. I wake up stiff and sore. Then I work out of that and manage until early afternoon, when the nerves get sore from being trapped in my arthritic spine. Then I suffer until I have to lay down.......and then the cycle starts all over again. EEEKKKKK!
My doctor says that my spine is getting very bad and that is what is causing the pain. But I don't want surgery if I can help it, and the doctors don't want to operate on me, because I have porphyria. So I suffer as the day goes on. Recently I was falling because of nerve damage to my leg muscles, but that seems to have gotten somewhat better. I know it's a long babble, but I hope this has answered your question. AS is supposed to be bad in the morning and then get better as the day goes on.......BUT, with bone damage that isn't always true.
Regards,
Ellie
