I've noticed bouts of weight loss since my symptoms first became bad, some 8/9 years ago, which was before I used NSAIDS.

I've lost amost a stone with some 'episodes' of unexplained weight loss, yet I've never gone out of my way to lose weight, nor changed my eating habits.

With any particularly bad 'flare' I'll lose pounds. I think its usual for alot of people suffering this.