Hi again Janet!

I was dumbfounded to read that your doc was an Opthalmologist who practices at the Eye Institute!!! I was shaking my head in disappointment and disbelief!

It is not uncommon for the doc's to be unable to see very low level inflamation (even through their sophiscated scopes) and it is also not uncommon for iritis to suddenly rocket out of control for apparently no reason. In your case however, I suspect the reason is clear in that they had you lowering the dose too abruptly.

I am so sorry to hear it has attacked both of your eyes now. I've had both eyes affected at the same time, on 3 different occasions... and so the word "rare" has almost lost all meaning for me.

I'm so happy to hear that you're seeing someone else now who seems more competent! Yay! I am hoping they also gave you a night time (steroidal) ointment called Maxidex? Opthalmologist's will have differing approaches to treatment (so this is not standard), but personally I find it makes an amazing difference. It is used because we can't get up every hour in the night to administer drops, and therefore it provides continuous treatment through the critical phase. It's only appropriate when taking higher dose levels of pred drops, and is stopped when you taper down to 5/day, as it needs to be in balance. If your eyes don't noticeably improve within 2 days, I'd suggest calling and asking for it specifically.

I wish you the best and hope to hear that things are improving for you very soon!
Take care,

mig

mig