Srry to bother you, but your post gave me so much hope, I am cryin. I am so afraid of the Remicade, and of Being ported, I read some people talk about shots?
My dr says I need remicade as it is the most effective wih very aggressive AS, that I will have to be ported with a peripherial line, sedated, and it will take 2 hs of lying there.
If it is not too much of an inconvience, could you please, maybe walk me though what to expect?
I hurt so badly, no amount of pain meds quiets the storm in my spine. So I am really excited that something may really give me a few moments peace, but for some reason, I am petrafied. Maybe he gave me too much info for one day, lol, you have AS, it is aggressive, you need the more aggressive tx, it is this.....WOW!
He said one treatment (tx) every 2 weeks, then montly, then every 6 weeks etc, utill we find howfar e can go inbetween and still be happy with the result.
I
I currently take methotrexate, he just doubled my dose, bextra 20 mgs twice a day, folic acid, sucrulfate, and prilosec, and prescription iron, it seems I have a pretty severe case of clinical iron defecient anemia..........if that info makes any difference on what to expect.
Thanks for putting up with me,
thanks agan for the great andinspiring post about remicade,
My best to you and yours,
Shu
