Hey Teddi, when I'm in an extended and really bad flare, I shed weight like a dog sheds fur during molting season. Two years ago, I was down to 132lbs (I'm 5'9.5") and looked like a rake. Everyone was worried that I'd stopped eating. I hadn't. I was eating as much as usual, but for some reason the weight just drops off me sometimes. I've gone back up to about 147 and am maintaining it there, thankfully.
You are definitely not alone in this.
Hugs,
