Hi Friends, long time on see.
I'm sorry for not being around much I got no excuses I just don’t go online much anymore. Mainly because I have been off work for the last 10 months ! So since I haven’t been at the office and we only have dial up at home, I never went online!. But anyway I’m back to work again So I’ll be here more often now.
.
It great to see most everyone is still here, I’m sorry to read most haven’t had much change in our conditions and then there’s those of you that have had personal family issues and health problems to deal with on top of their AS , My love and prayers goes out to all of you who are dealing with these things.
Well like I said I’ve been off work for nearly 10 months, just started back three weeks ago and getting back into it slowly. I learned the other week that I may be able to started remicade in the near future; I think I’m happy about it! I’m not sure There’s so many unanswered question for me about these "new" drugs. On one hand I want to try it to see if I can be pain free! But on the other hand I’m afraid of the "unknown" effects!!
If everything comes together and my insurances well pay for the whole cost, I’ll most likely try it, "I think" .
Hmm what else, well oh ya I’m now fully addicted to narcotics! I’ve been on them since last spring. Until four weeks ago I was taken 90mg of hydro morph cotton 3 times a day ! Now, after four very long weeks of withdraw and long days and nights I’m down to 24mg 2 times a day ! I’m determined to get off these darn things!. But its now at the level where I’m in a great deal of pain all day, everyday and I’m not sure how or if I can go any lower ! . I would like to be off them totally when I start remicad but that may not be possible.
The Night sweats are unbearable! I wake up soaked every night, its an wonder my wife even bothers coming to bed at night ! Oh and then there’s my wife ! She's still here, still with me, I cant believe she's put up with me all these years. Half the time I cant do anything around the house but I never hear her complain not once. I'm so lucky.
So anyway that’s enough complaining , really when I look around I’m not that bad off, oh sure there’s tons of things I cant do any more but there are so many others out there that have it much worse then I do. Even with my problems I’m still truly blessed. I guess that’s my prayer for all of you here , I pray that you can find or see the things in your life that are special to you and help make the fight with AS worth fighting . Take care my friends and remember
Keep on Kicking
Martin
<br>"Trying to fly on broken wings"
