hi
i am so so sorry to hear about ur children, i can only imagie how awful it must b. by posting here and asking us for help u r not failing ur being the best mum there is.
i am ready to write here but my greatest fear is the length of time it will take to get there as i live in the uk, i believe it can take up to a week. pls pls is there any chance u could print these pages and show ur son and daughter?
if u can my message is:-
pls pls hang in there u r not alone, AS is very very difficult to live with, i for one have to live with the pressures of supporting my family while living with the awful pain of AS. but it can b done pls hang in therei offer u my support with all my heart.
take care
heather