Wow, Buggie, that is some big news to receive, no doubt. As many years as I've been reading up on AS and hanging out with this bunch here at KA, that's the first time I've heard of something called AS lung disease. It does sound like you have found an excellent doctor who really knows what he's doing, and that alone is worth its weight in gold. I hope that finding him helps offset the fear that you feel right now, as it really does sound like he will be able to help you. Best of luck, my friend.
Brad