Hey Megan, yah, I know the RLS leg pain. I'm on 20mg Amitriptylene (never can remember how to spell that). It helps me sleep, but since I'm asleep, I'm only guessing that it helps with pain. I find that especially when I'm super tired, my lower legs ache something fierce. It's right through into the bone marrow, I swear. One thing that can help is sitting on the couch with my legs elevated as if they were swollen, supported by a nice soft pillow. I often fall asleep with my legs crossed tightly together. Not sure why, but it's comforting. Ice paks can help as well, sometimes. NSAIDS aren't much help with this, by the way, not for me anyway.
And I find that the jiggling leg thing gets worse the closer I get to my next infusion. My sweetie noticed that, actually. If I'm wrung out, I'll often sit on the couch under a blanket (because I'm always freakin' cold in the evening), the soles of my feet on the edge of the coffee table, my shins held tightly together, but here's the part my sweetie thinks is adorable ... my feet begin to intertwine, so my toes are clasping each other, so tightly they get all curled up. It's hard to describe, really. But that sort of says it.
That RLS leg pain really is awful. I feel almost desperate when it happens. Like I'm going to scream or burst into tears any second. My dance classes help alot, because I'm using my legs, moving around/walking seems to ease it. But I have to be careful, because I'm apt to over do and then the rest of me complains. It's a truly vicious cycle.
Anyway, my dear, I am sorry you're going through this ontop of everything else. Wish I could make it stop for you.
Warm hugs,
