Administrator/owner: John (Dragonslayer) Administrator: Melinda (mig) WebAdmin: Timo (Timo) Administrator: Brad (wolverinefan)
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· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
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i am deeply offended that you would think for a moment that i enjoy this, that i don't work with every ounce of my being every day to be as well as i can be, and that i don't do every thing in my power to be as positive as i can be. and thank goodness for the good people on here who let me vent when that makes me feel better, or get practical advice that does help with my symptoms, or more important than anything else, make me laugh and forget about how i'm feeling for a while. and i bet i speak for many others as well. i've heard this sort of talk before, had a colleague that said, "i think sick people just want to be sick and they'd be healthy if they just wanted to be." at this point, i did not have this disease, and so i spoke in behalf of a friend with MS, a stepfather with crohn's, etc. this is the sort of talk that tries to place blame, like its their fault that they don't feel better, like they are doing something wrong. i will not be made to feel guilty that i am not doing more, or that i am not doing something right. i will not be made to feel like i've brought this on myself. talk about negativity. and if you don't mean for it to sound that way, then sorry, but that is the way it comes across. interestingly, your comments don't really play on my emotions because they are so totally off base. i think it is dangerous when we assume things about others, so please don't assume these things about me or anyone else here, the things you say couldn't be further from the truth. you say you want to help others to feel better, i believe you. but the first step is to not judge others.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)