my SI pain is mostly a pain in the butt.... literally! only when its really bad does the lat muscle (lower back) spasm strongly, but always a pain in the butt, to some degree. also pain the thoracic spine (mid to upper back), not too bad, just an ache if i've been sitting or standing or laying too long. and my neck, cervical spine, can get this hot burning sensation if sitting too long. and that occipital pain kat mentioned, i used to get that along with my migraines, remember asking hubby "to squeeze my neck", that was the first pain i had, that and the burning in the cervical spine when sitting and working with head down for too long, 10 years or more maybe before i considered that i had problems, as those pains would go away if i just got up and moved around and stretched my neck.

for me, a lot of my problems are tendon and ligament problems, tendonitis or torn tendons or ligaments if worse. but no matter how bad they get, its always localized right where they attach to the bone, the enthesis, even when i've needed cortisone shots. always at the attachment points.

and as steph described, took awhile to realize i just couldn't explain it all away, though my mother is still trying to explain her's all away and she's 20 years older than i am, but not as bad off.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)