I'd start looking for a new doctor (don't quit the one you've got until you find someone else). It takes time and effort, but it's worth it. Last year I got fed up with my primary care doc who didn't seem to take my illness or my rheumatologist seriously, and would sometimes roll her eyes when I mentioned some research I did on the internet. So I asked other docs and friends for recommendations, shopped around, and found a wonderful internist/primary care doc. (I really like my rheumy already).
I bring a list of questions to my appointments, and my doctors appreciate me being organized and focused, and are willing to answer all my questions, and discuss treatment options. The only person who knows your own health best is YOU, so doctors should respect that.
Good luck!
