Hey there bosunmate, I must say your username is rather comforting. I was once told by an old fisherman after I fell off a ladder, there are two things you never turn your back on on any ship: One is a ladder and the other is a bosun's mate...lol
I am really glad to hear from someone else who has never experienced a remission. I have always commented that there are no flares for me, it's just constant and unrelenting. I think very few of us have to live like this and it's good to hear from someone else who lives this way. It seems so rare that both me and my doctors have wondered about my diagnoses at times - fortunately, I'm a classic case and there has never been any doubt...except from me.
What you wrote about waiting for a remission to kick in struck me and I only just noticed that you are from the TO area. I was born and raised in Hamilton (Oskee-wee-wee, Oskee-waa-waa...).
I suspect you've been "waiting" a lot longer than I have since I've only been dx'd for about four years now. How do you keep going? Is this as good as it gets?
Chris