i do think the secret for many of us is to just keep searching til we find a rheumatologist knowledgeable in the spondyloarthropathies. i kind of assumed any rheumatologist should be, but my experience suggests that that may not be the case. i do hope that as more of us with less classic AS or IBD or psoriasis get diagnosed and as undiff spondy becomes more common knowledge in the rheumatology community, that the newer information and knowledge makes its way to not only rheumatologists but GPs as well.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)