i have a spondy, but not sure which one yet, new rheumy evaluating that.

anyway, i'm on it, have been for a little over a year now. my experience has been that it does not prevent inflammation, but once i have it, it allows my body to get rid of it faster, and allows my body to heal up tendons and ligaments faster. for me its an important tool in my toolbox, though still looking for a drug that prevents inflammation as well.

the way i got it was suggested to me here and described on the LDN website as well. i contacted my local compounding pharmacist and asked for local doctors who prescribed it. got that name, made an appointment with that GP. but then when i told my rheumy about it, gave him scientific journal articles, showed him the info on clinical studies as reported on the LDN website, he agreed to write the prescription so long as i was willing to pay for it if insurance said no. i made that offer because i know its relatively inexpensive, but insurance does cover all but my copay. but i am afraid that as i change rheumies it will no longer be prescribed, so i've rescheduled with that GP that my compounding pharmacist told me about. my new rheumy is fantastic, but when he heard me say it didn't stop the inflammation in the first place, that wasn't good enough for him, not sure he'd continue me on it, though he might if he knows it helps me immensely on the backend (in the healing process).

tendons that would have taken months to heal now take days to a week or two to heal. feet that would have taken weeks to recover now take a few days.

it is an important component to my regiment, just not enough by itself, IMHO.

and, btw, i've yet to meet a doctor who has heard of it.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)