First hello to all. This is my first post. I finally bit the bullet and registered after a night of wrenching pain and no where to turn for support.
I am at a loss.. I have constant, debilitating pain in my SI joints which from recent memory has not subsided in intensity for going on six months now. I am now standing at my desk typing this post getting weird looks from coworkers who have no idea the pain I am in. I don't understand how anyone can lead a normal life with this condition. I'm 25 years old in great shape otherwise, but when my AS flares I feel trapped inside my body; hobbled, debilitated.
My parents seems to think that it is a made up disease and that I just need rest or that I'm fishing for sympathy, but on morning's like this I wish I they could be in my shoes.
Even when I sought out a Rheumatologist and told her my symptoms she seem more intent on explaining the low odds of this condition, rather helping me to treat it, even after I tested positive for the HLA-B27 marker.
I recently switched jobs and my health insurance doesn't kick in for another month which seems like an eternity. I took my last 75mg Indomethacin SR a few days ago after paying $90 for a month supply off insurance. Even so I barely feel the benefits of indomethacin.
I've been on the no starch diet for 2 weeks, and it seems to have made my condition worse. Can that happen?
I'm just at a loss. I hope there is some light at the end of the tunnel, because at this point I am not looking forward to managing this for the rest of my life.
P.S. - I am extremely humbled by all those who manage their condition, and I realize my pain may seem like a bee-sting in comparison to what you experience, so I apologize if this post offends you. It is completely unintentional.
