Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Am I a rare exception to the rule?

yeh, when my SI joint is in a flare, there are times i literally can't walk, sometimes hubby will have to help me to the bathroom screaming all the way. thankfully i'm not like that often. but for me, when the SI joint is inflamed, my muscles spasm so strongly in response that even a little step hurts too bad, both the strong muscle spasms and a very sharp pain in the pelvic area / SI joint, like something's not positioned right or something......

how common is this, i do not know.

but i've been here a few years and have heard others say similar things.

but i do know when i talk to doctors about this and about tearing tendons during flares, well, the most recent rheumy, dr B, told me that most people with undiff spondy don't have flares that bad. but did say that if the inflammation is really bad, these things can and do happen; he wrote in my letter back to my GP that i have "prominent enthesitis", also that undiff spondy can be highly episodic, which it is for me. so i guess he doesn't see people like me, like you, too often, but he wasn't necessarily surprised either.