does sound similar to others on this site.

i have undiff spondy so there are differences for me.

some things the same though.

my CRP and ESR are normally borderline; read that the spondyloarthritises attack the entheses which are avascular, so the inflammation doesn't get into the blood.

I would mention the GI problems; wouldn't necessarily call it IBS because then its downplayed, but I'd discuss the symptoms.

for me, the joint issues have been horrendous, but ironically its the gastritis and inflammation in the ileum seen in a colonoscopy and the small amount of psoriasis i get that got me to a dx finally. If even one of the several rheumies I saw had asked me about my skin and/or my GI tract, had known to ask, i could have been dx'ed years before I did. i didn't know at the time to mention those things; a rheumatologist should have known better, but they usually don't, in my limited experience. So, bring the GI stuff up yourself; its important info for the spondys.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)