Hello everyone,
My name is Oksana, I am 25 years old and have been diagnosed with AS for about 3 years now.
This evening I am having some anxiety due to a new emerging symptom. My rheumy does not communicate via e-mail and in Alberta, Canada it is almost midnight.
I have been experiencing a new neck pain over the spine, slightly to the left. It happens when flexing and extending the neck, not on turning my head. It started about 5 days ago. I woke up with the pain and assumed I slept on it funny. Have been applying heat and stretching with no relief. I just had the epiphany that it may be AS and not a muscle issue.
The majority of my symptoms have been in the SI joint and hips.I am on Celebrex and Sulfasalazine and have had pretty good control for the past 3 years with occasional flares. MRIs have been clear in the rest of my spine up to date. My last MRI was last year. In August my C-reactive protein was randomly elevated although I was not having any pain. It usually only elevates with flares. Currently my pelvis is fine I do not feel a flare coming.
I am wondering if anyone has experienced pain like this which skips the rest of the spine. To my understanding the AS ascends up the spine and does not skip like this from pelvis to cervical spine. Hopefully I am just freaking out for no reason and it really is a soft tissue issue and not related to my spine. Any feedback that could calm my anxiety would be much appreciated.
Thanks,
Oksana