Thank you for the input, Pea; it's helpful for me in trying to get a more realistic handle on what may or may not be expected, and how the risks are handled. So much better than hearing it from docs who've not experienced it for themselves & only give textbook answers. I know not all docs are that way, but the Rheumies I've tried here have been. I really appreciate your taking the time to include your experience.
AS 30+ yrs HLA-B27 positive Crohns (20 yrs of NSAIDS controlled AS but destroyed gut) Chronic spontaneous tearing of tendons & ligaments; limited walking ability Humira, LDN, LSD, L-Glutamine, multi-vit, vit d, vit c, adjustable bed, every pain patch and/or topical analgesic known to man,  Nortriptyline for pain.
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