Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group My son.

HI LORI,
Thankyou for your reply....I can sort of imagine how hard it must be for you to see your son cop this and i hope i can draw on the reserves should ever the need arise.You must be one special mum ....hey thats what mums are for...thanks again and take careJude2

Hi Kat,
I really believe that about letting kids be kids .We are so lucky to live here with the bush behind us and the ocean a 5 minute walk away.The neighbourhood kids are so great and they have a ball along with mine building cubbies and camps in the bush. Unfortunately the private swim centre shut down last year and the town pool lessons are a rip off with up to 5 children in a class for half anhour...not going there...tho in summer the kids spend heaps of holiday days at our friends pool down the road so they still have that.Yes I am worrying and I know it may not happen but its still a worry.thanks and you take care too,jude2

Hi Tim,
Thank you so much for your kind post and heres hoping for some advancements soon as well.Best to you and your family,jude2

Hi Cindy,
It is a worry and since i found out i cant stop thinking about it.I guess i should try to concentrate on the moment instead of the what ifs?....I wouldnt be in a rush to get his blood work done unless you suspect something...good to here from you ,take care jude2

Hi Lisa,
thanks,Life is a worry without adding more..you are right,...you know what mums are like tho........?take care and of your lovely family jude2

Hey Jude (take a sad song and make it better)

The good news about this result happens to be that you will know in advance if your son begins to develop the symptoms of AS. It means that you can make corrections before it is too late and he ends up fusing.

I think you need to look at the positives rather than worrying about something that might not happen. You need to make sure that any of the other factors that might have helped your own AS to develop are eliminated so that he will not end up the same way.

I have three sons, and only the middle son has shown any signs of problems that might be similar to my own set of symptoms. He told me that his toes keep on dislocating, and yes I end up with dislocated toes but not as bad as his case. He told me that one of my nieces has the same kind of symptoms. Now it could be that this is a link to RA within the family. I had a great-aunt with RA, and I have the positve RF (now at 66, so it is beginning to rise).

You have been offered some good advice about some of the more positive steps that you can take as a prevention exercise. Since you live in the tropics, though, beware of Ross River Virus, because if he gets bitten by the mozzies and he ends up with Ross River Virus, then I would bet anything that he will end up with AS.

MaggieinOz (Sydney)

Gidday Maggie,
Hi and thank you sooo much for that positive out look on it...you are so right,I actually thought that at first and then all the worry took over.It is hard to fathom your child maybe going thru the same...lets hope he wont.Maggie I will also keep in mind about the ross river...not nice at all.Where have you been,not that ive been looking in much because back at work.[Was great to start and now ,cant wait for the end of the season.],How have things been going? take care jude2

Hello jude,

Others have given you great advice and support so I wanted to add my .04 (inflation lol)

I've had my back pain for the past 15yrs. I also remember now when you mentioned telling your son to straighten up, my mom used to say that to me too when I was a teen. UG! Anyhow, I was tested last year and positive for HLA-B27, and since my daughter developed Hashimotos at the same time I became a type 1 diabetic, I had her tested also for the gene. Well, she came back positive also.

I grilled her about various aches and pains and told her just to keep an eye out for anything weird. The only thing she's stated that hurts is her shoulder and neck muscles burning a wee bit and achey, I think she sits at the computer way too long But my next appt I'll be talking to my neuro about them, if she should be checked out.

I worry too.. just cannot let it eat you up. Best I can say, try not to worry so much and just keep on top of it. Nothing you can do to stop it, because this is just something out of our hands. But if you're aware, it won't be so bad IF it ever happens.

You're kids are lucky to have such a loving momma. Take it easy.