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Nov 2nd, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: May 2007
Posts: 19
New_Member
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New_Member
Joined: May 2007
Posts: 19 |
manatee - ldn is known as "low dose naltrexone". Check out www.lowdosenaltrexone.orgMegan, I've been looking into this treatment myself, and will mention it to my physician. Please keep us updated on your results!
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Joined: Apr 2002
Posts: 3,607
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OP
Joined: Apr 2002
Posts: 3,607 |
Hey Cindy,
LDN or low dose naltrexone....oh man where to start. Ask Bridget. She's the pro on this one. lol
www.lowdosenaltrexone.org
autoimmunedisease.suite101.com/article.cfm/low_dose_naltrexone
OK there's a good place to start. It's a pill, and an opiod antagonist, but used in a super low dose for AS. No one really is completely sure why it works for some autoimmune diseases. There really aren't that many published studies using it, and certainly none where it was used to treat AS. I have no idea if it'll work for me, but really, who ever knows what's going to work or not. It just has a super low side effect profile, and it's relatively inexpensive. And I can add it along with tylenol, prednisone, and enbrel. Can't be worse than my 8 week humira trial (too much like stabbing myself with an acid coated fork). So here we go.
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Joined: Dec 2006
Posts: 336
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Dec 2006
Posts: 336 |
Megan...I am soooooo excited for you!!! This is so great that someone in Canada is trying this treatment. When I went to my Rheumy in March, I printed out the info that Bridget had posted then about LDN, brought it to him, and he basically said "no" to me too. However, on the other hand, my GP is willing to do anything for me at this point, so perhaps I should print out some stuff for her so that she could look it over when I see her at the end of July....hmmmmmm....great idea Meg!! OK, so you totally have to tell us when you get your script filled and when you start taking the LDN! Ohhh...so praying for ya that it works as well as it has bor Bridget, Trina 
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Joined: Sep 2006
Posts: 325
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Sep 2006
Posts: 325 |
Congratulatoins on your new prescription. My post here is for those newcomers to the site who are looking at all options. The incredible benefits described by Bridget, are a lot like those I felt from taking a magnesium citrate supplement. I am not saying magnesium citrate supplementaton will work for everyone - but it sure helped me.
Magnesium for Pain Stiffness and fatigue - and a news article
On the first day I supplemented with magnesium citrate- my muscles relaxed - much of my pain went away - I gained flexibilty.
It use to be hard for me to put on my pants or pick anyting up off the floor. I now do these things very easily.
Understand that there of those of us who can not afford pharmacuetical medicine. There are those of us who have no health insurance. Magneisum Citrate - and other aborbable forms -cost about $10.00 a month.
Last edited by layer3guy; 07/04/07 04:20 AM.
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Joined: Apr 2002
Posts: 3,607
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OP
Joined: Apr 2002
Posts: 3,607 |
oops I was posting the same link right about the same time as you! I'll definately keep you posted.
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Joined: Apr 2002
Posts: 3,607
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OP
Joined: Apr 2002
Posts: 3,607 |
Aaarrrggh Trina that makes me mad. I can't believe your rheumy completely blew you off too. I just don't get it. I understand there are fears of side effects...but come on....after mtx, loads of prednisone, many NSAIDs, a very bad reaction to pamidronate, then enbrel, and humira....LDN is the most benign substance of them all!!! And our rheumies put the kibosh on that one? Makes you wonder.
Hopefully your gp will be more open to the idea. I really didn't expect my gp to go for it so easily....and I'm a bit anxious as to how my rheumy is going to react when he finds out about this conspiracy going on behind his back. I can't imagine rheumy will be too happy with gp regarding this either.
Let me know how it goes if you see your gp about it. Good luck!
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Joined: Apr 2002
Posts: 3,607
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OP
Joined: Apr 2002
Posts: 3,607 |
Quote:
LDN is actually pretty cheap too (as it's a low dose of an actual pharmaceutical) coming it at $38 for a month's supply.
Wonder how much it'll be in Canada...and if either of my drug plans will cover it. I'm guessing one/both will cover the actual drug, but not the re-compounding from 50mg to 4mg tabs. We shall see tomorrow.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Megan that is marvellous news!!! I hope you have the same luck with it as Bridget (not, of course, admitting in any way that it actually worked for Bridget  ). Would one of you pm me the info that Bridge sent you? I'd like to print it off for my rheumy as well. He hasn't heard of LDN for AS (I've asked), but I'd like him to have the info. Warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Thanks for the info guys. I appreciate it a lot.
Cindy
" That which does not kill me only makes me stronger"
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