Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Most lovely Christmas Present

Good folks and rotten folks alike can say some wickedly hurtful things out of frustration. I don't know where in that spectrum your son falls. AS does bring with it a whole boatload full of family frustrations but unless your son is still 16 he sure needs to grow up fast and absorb some wisdom from somewhere.

I'm glad he apologized but hopefully he would be wise enough in the future to never tread where comments like that are passed. They don't fade away fast and often they don't fade away ever.

If he does want wisdom, my colleague Bruno is a wonderful teacher of wisdom to the disrespectful.

I am so sorry that your sons treated you like this. No one can truly understand what it is like until they actually have it. My dad would say lose weight and your back pain will go away. It irritated me to no end. I knew it was not weight related (before it was finally dx'ed) ... because if i knew it was weight related, I would have worked on weight. (which I am!)

Thanks Steve, I was offered Bruno before.

At 30 you would think my son would have known better. Maybe, it's the fear of the future, and what it might bring. He has many of the health issues, I have. Being male his AS will be that much worse (his symptoms started when he was 16), maybe that scares him.

Maybe it's the thought of not being able to deal with pain without the help of medication (because of allergies), scares him.

I have my family here who understands. They have help me immensely this past week. The hurt from my son's comments, will never fade, for that reason I told his brother (Jason), they will not be told anything further about my health. I can't deal with the abuse, inflected on me, from them knowing.

hugs

Gerri

I want my sons in my life, I just can't accept these hurtful abusive words. I love them dearly, and will always love them. I told my youngest son, that my health issues from now on will be kept to myself.

I just wanted my boys to understand, when I raised my voice, or ask them for help, it's not because I want to be mean to them, but I just needed their help. because I am always in pain, somedays worse than others.

Thanks cherkibbs for being there for me.

Hugs

Gerri

Gerri, hon, I only just saw this. I logged on from home this morning to do a quick check and saw this. I'm so glad that Chris apologized. Who knows what was going on in his mind. I have a feeling there was alot of fear there, tho. Fear for you. Fear for himself. Fear makes us say the worst things.

You poor thing, sleeping on that matress all night with no CPAP. Try to rest today, OK? And try not to worry about the biopsy. It will be what it will be and you won't know what that is until it happens. (I'm trying to be phylosophical here)

You are loved by so very many people, Gerr. I'm so glad you turned to your KA Family during this.

Many hugs,

Hi Kat, I am doing better. The tears flow when I least expect them to. Like now reading your lovely post.

Thanks for being there for me.

Hope you had a lovely Christmas and Happy Newy Year.

Hugs

Gerri

Gerri:

My pain is so severe that everyday I need to talk myself into continuing the journey.

Please know that we understand and send prayers in your direction.

Looking back I think my mom had AS but I never understood what she was going thru until it hit me so very hard.
People look at me and say "you don't look sick" but my entire body is now in severe pain. Pain meds not working plus they have destroyed my digestive system. Yesterday I finally gave in and ate a few cookies and this morning awoke with pain off the charts.

May God give you strength to continue the fight.

Love,

Mary Alicia in Maryland