Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group A Typical Day In Pain

Carol...thanks for the moral support and I will post an update.

Hi Michelle,

I can relate to your day. Interestingly, a few times I was asked what a typical day in a flare-up is like so a few weeks back, I wrote a day I remembered as a tough day.

I can usually get through a few weeks of continued pain and fatigue, but it starts to get overwhelming as time goes on And so many people have no clue of the pain you are in.

I feel for you as I read about your day. Please do not get too discouraged. Thankfully we have such a fine support here at KickAS.

Thanks so much for sharing.

Bill

It is sad when people in LA can not get the meds they need to get them through the rough spots when the pain levels are shooting up, yet yesterday on Fox News they were talking about about marijuana vending machines for people in California to buy weed like they do a coke or pepsi.

Brent

HELP Mister Wizard I don't want to have AS anymore!

Michelle,
My heart goes out to you.
I couldn't have said it better myself.
I wish you better days ahead

Sherri

Michelle..
I'm so sorry you are going through such a rough patch. Your words hit home...
Every day is a challenge...but with AS...geez....it's outright insane with pain!
I hate that every night I go to bed and pray that I can wake up easier. I plan things. I plan to shoot out. Go run about for lunch with friends...shop early with hubby and little man. ALas...I'm lucky if I drag out in time for time with hubby and little man. But I've had to accept the changes. Modify alot. Dont like it but hubby helps me when he can. I hate it when I wake up and the mind is racing and doing well but the body is just a little piece of rug on the bed...useless! Draggin out of bed...popping half a norco and wait about 20 min and try again to move. Take a hot shower and pop another half a norco. Then I'm somewhat able to breathe normally..if that makes sense???

This weekend was wonderful...but the rain was killer on my bones. God....I hate rain when it's on its way...does terrible things to my ribs and thoracic. I hope that you can find some relief soon dear. You are not alone...we are all here for you.

I think it's so difficult explaining to others. I've gotten used to saying..."it was a little tough today..." instead of ...my back was on fire...there are daggers in my spine and i want to puch a hole in the wall from the pain. lol When my pain shoots up high i get nauseous. Today the heaves started at the dining room table. I was having trouble breathing. Spine hurt so darn bad. I had to call out for my Gianna. She shot over with my "medicine wheel" she likes to call it. It has my norco and soma in it. Then she says "Okay..time for bed little lady...just hold on to me..." She puts my arm over her...bless her heart..she's about 3 inches shorter than me! But she got me there. Art was at work. She has a good heart that kid. Love her so much. She entertained me with her you tube videos while I "attempted" to rest...she meant well and I got some good chuckles out of her imitating the videos.

Sorry to ramble...didnt mean to hog it up..just wanted to let you know I am thinking of you and I've been where you are at...and it will roll over ..and hopefully very soon....much luv...buggy

I'm so sorry you are going thru this. That level of pain is beyond my comprehension...
Thinking of you, and I do hope some relief is on its way.
best wishes
Judy Wallace

Thanks Bill and yes we do have a WONDERFUL support system here....

Amen to that Brent!!! Brent for Congress!!

Percy...nope....I feel like Dorothy AFTER the house crashed into the field!!