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Oct 6th, 2025
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Joined: May 2009
Posts: 164
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: May 2009
Posts: 164 |
Hi everyone!
I am quite new here and must say it is an amazing place to be. I was diagnosed with AS during 2006. At this stage I am still not really accepting this illness and just want to be without it! Wishing and praying it away. My biggest fear (as a mom) is for my two children, 15 and 12.... Don't want to put it into words.
I was really suffering during 2006, was hospitalised and then got better with lots of meds. This year I started with a bad flare-up. My ESR was 94 in February. Again hospitalised in March with Solu-Medrol IV. Not nice! Am now trying to go without starch and find it quite difficult but am feeling better already.
I have lots of compassion for everyone of you, especially the younger ones. I feel "fortunate" to only suffer from it now at age 47.
Take care and all of the best.
Ronel
"It's not good or bad. We can't see the big picture."
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Joined: Sep 2001
Posts: 2,762
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Joined: Sep 2001
Posts: 2,762 |
Welcome Aboard Ronel,
We are glad to have you as a part of the KickAS family. I know that others here have those same worries that you do. Most of us don't need you to put those into words.
Feel free to make yourself at home, and let everyone get to know you.
Keep Kickin'AS Chris 
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Joined: Sep 2002
Posts: 1,763
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Sep 2002
Posts: 1,763 |
WELCOME ronel, youve come to the right place....oak
 my little angels
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Joined: Feb 2009
Posts: 213
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Feb 2009
Posts: 213 |
Ronel - baie welkom... 
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Joined: Aug 2007
Posts: 1,489
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Aug 2007
Posts: 1,489 |
Welcome to KA! You will find a ton of helpful friends and information on this site.
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Joined: May 2009
Posts: 164
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: May 2009
Posts: 164 |
Roogy, Baie dankie! Thanks so much. I gather that you are originally from South Africa? So many of us wandering around these days!
I have a brother in New Zealand - he has AS as well, fortunately under control at the moment. He is swimming a lot.
Ronel
"It's not good or bad. We can't see the big picture."
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Joined: May 2009
Posts: 164
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: May 2009
Posts: 164 |
Thanks so much, Farinelli, I appreciate. Have learnt a lot already.
Ronel
"It's not good or bad. We can't see the big picture."
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Joined: May 2009
Posts: 164
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: May 2009
Posts: 164 |
Thanks Chris! Yes, I have to keep sane and not worry about everything little pain my children mention... (But I am very aware and will not turn a blind eye.)
Ronel
"It's not good or bad. We can't see the big picture."
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Joined: May 2009
Posts: 164
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: May 2009
Posts: 164 |
Thanks to you as well Oak. What lovely angels you have!
Ronel
"It's not good or bad. We can't see the big picture."
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Joined: Feb 2009
Posts: 213
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Feb 2009
Posts: 213 |
Yes, I'm South African... not the only expat on here either... I've not been diagnosed as yet, although have struggled with iritis for many years now so when the joints started acting up it seemed obvious to follow this line of enquiry as I'm HLA-B27+. Reducing starch and increasing exercise helps me - I'm sad that I had to miss my pilates class tonight, but I'm fluey so didn't think it was a good idea. Swimming is definitely great too.
Anyway, welcome again - you'll find loads of info here (as well as some tasty no-starch recipes!)
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