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#356041 09/09/09 04:54 PM
Joined: Jan 2009
Posts: 326
Zanni Offline OP
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
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Posts: 326
YYEEAAHH! My mom finally gets help! Today she starts remicade and I'm soooo excited! She's been in so much pain and I honestly couldn't stand it any more! I hope and pray that this helps her! I am realistic though and realize that she won't be %100 pain free but would love for her to get relief! I had to us the cake as my post pic on this post because I feel its her new begining! I have huge hopes for it!!! Does anyone know approx how long after first infusion this can work? My fingers are crossed! Cross yours to please! She needs and deserves this!


Zanni
Zanni #356042 09/09/09 05:45 PM
Joined: Jan 2008
Posts: 21,346
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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good luck to her!



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Sue22 #356043 09/10/09 04:32 AM
Joined: May 2009
Posts: 184
M
First_Degree_AS_Kicker
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M
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Posts: 184
Thx Zanni! I love you too!

But no worries, I'm not any worse off than you!!

Success on my first day! I look forward to the rest of the year and if I can tolerate it, then I believe you will be as likely to handle it also. When you can and are ready! That is my greatest wish in the whole world right now. We have had so many similarities with meds that I figure that if I do it first and do ok, then it is more likely to work for you - kinda weird huh! It seems par for the course for us doesn't it!

But thank you sooooooo very much for posting this! lolove!


mamallama ------------- "Laughter is life's and sanity's purest medicine" !!Me!!
Joined: Jan 2009
Posts: 326
Zanni Offline OP
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
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Posts: 326
*Amen*


Zanni
Zanni #356045 09/10/09 04:51 AM
Joined: May 2009
Posts: 184
M
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
M
Joined: May 2009
Posts: 184
Hey, are those two guys smokin, smokin a little sometim sometim from the pain clinic-maybe from mexico?

Hahahahahahahaha Good lookin out!


mamallama ------------- "Laughter is life's and sanity's purest medicine" !!Me!!
Zanni #356046 09/10/09 06:31 AM
Joined: Feb 2009
Posts: 702
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J
Decorated_AS_Kicker
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J
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Hi Zanni,

The time it takes to work varies with every individual, but if you are lucky, it can start to work in two weeks. In my case, it took 6 weeks before it kicked in.

All the best,

James


I ache, therefore I am

Zanni #356047 09/10/09 12:53 PM
Joined: Nov 2001
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Zanni, this is good news. I hope Remicade works as well for her as it has for so many of us!!

It worked for me during the first infusion. I was still hooked up when I realized the effect it was having. It doesn't work that quickly for everyone; some take months before they really feel it. They say for some people it can take up to six months, by the way. Many others respond much sooner than that, however.

Please let us know how she does on it, OK?

Hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Joined: Jan 2009
Posts: 326
Zanni Offline OP
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Fourth_Degree_AS_Kicker
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Posts: 326
Thank you! She did great yesterday! No adverse reactions! But ok, seriously? They said she could have some memory loss I don't know about all of you but this whole AS deal creates memory loss (I think)! Is it the meds or disease? Maybe both? Anybody with this symptom let us know! This could be interesting she said as of yesterday she didn't feel "better" just could feel something was there! Weird! Have a good one


Zanni
Zanni #356049 09/10/09 07:03 PM
Joined: Nov 2001
Posts: 18,187
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Keeping my fingers crossed. Of course, that could be dangerous if I forget why I have them crossed.

Hugs,


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Zanni #356050 09/10/09 07:19 PM
Joined: Apr 2002
Posts: 3,607
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Posts: 3,607
YEAH Zanni, that's such great news! I think I might know how you feel, I'm hoping my mom gets approved for remicade one of these days too!

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