Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Worried & I need advice please....

Last night I woke up about 3 a.m., my arms hands, legs and feet were numb but my legs and feet were the worst, I couldn't feel anything from the waist down....well, I needed to get up to go to the restroom and when I stood up on both feet, I immediately hit the floor, it was a soft landing, thank goodness, but I had to just sit there for about thirty minutes massing my feet so that I could get back up, so I just sat there talking to my puppy but as I was working on my legs & feet, I realized that they were just totally dead, no pain, no feeling at all, like when your leg goes to sleep but way more intense, the only way I could move them at all was to lift them with my arms, it was very scary....finally I got to where I could stand up but the numbness was still there, just to a lesser degree and it has stayed with me all day....I can't imagine what caused that....any ideas?

Hey Michelle,
Wow,that's crazy... glad you're ok and your pup was there to look out for you. My friends mum just got dxed with and autoimmune disorder, i'm not sure what the name is, ill find out asap. But her symptoms were exactly what you mentioned.. numbness in limbs and waist down, loss of feeling. Could be a crossover with AS and this maybe.. I'll get back to ya soon. Hope it settles down though or better still doesn't come back and you're holding up ok after your recent tough times. ((O))
Rob

Michelle, get your iron level checked. Thirty-four years ago, I had a similiar incident happen to me. A month prior I gave blood, and my iron level fell dangerously low. The nurse at the time gave me a shot of iron. Then I was told to take iron tonic for a month. Then I had to have my levels rechecked. I was advised never to give blood again.

It seems I am bordering on anemic, and my iron just does not rebuild.

Hugs dear friend

Gerri

I've got no idea what be causing that Michelle... but that sounds really scary, and as my mum would say, you've got enough on your plate right now. Can you give your doc or nurse a call? Have you been able to catch up on any more sleep?
Thinking of you.

Hi Michelle,

It could be all manner of things - but it is definitely NOT normal! (duh....)

It could be the onset of transverse myelitis - inflammation of the spinal cord - thought to be caused by a virus - best treated quickly for the best recovery.

I would be getting myself checked out ASAP, if I were you...

Hope you are OK,

Hi Michelle.
That dosent sound too good I agree with Louise you need to get it checked . I get the same problem with my arms go completely dead and cant move them thats trapped nerves so it could be a trapped nerve around your spinal cord. Get it checked soon as possible if you cant go then phone your Doc and get his advice.
Kevin

Hi Michelle,

My first question is, are you taking any new drugs in the last couple of months ? Blood pressure meds do this to me . The other thought would be spinal stenosis from the A/S. I have nerve pain because the fusion is compressing nerves in my spine sending pain signals to my brain.


Janet

Hey Michelle! I am not sure what to tell you. I would be concerned that something is putting pressure on your spinal cord. Have you had a lumbar MRI recently? If you lose bladder or bowel control then I would get to the ER as soon as possible. I was thinking cauda equina syndrome.

Craig

Hey Michelle,
It is odd that you would experience numbness in all of your limbs at the same time. I would think that would rule out almost anything to do with your spine since the nerve to the arms and legs are at different levels of the spine. It sounds more circulatory, but even then it seems strange that it would affect your arms and legs both.
I am in agreement with everyone else. See your doc quickly. While it may be nothing it could be something serious. Keep us posted..

Hi Rob....if you could get that, it would be great, thanks...yep, pretty crazy...now I'm afraid to go to sleep, I've been up all night beecause I'm afraid that it's going to happen again....