Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group refusing to adjust your diet - ur soft in the head

its my opinion - diet literate AS suffers that arent prepared to adjust their diet to cater for their pain levels associated with Ankylosing Spondylitis are SOFT IN THE HEAD. Prefering to spend their days complaining about how much avoidable pain they are experiencing rather than spending their days preparing the correct food to decrease the pain levels associated with reactive arthritis.
Ask your self... would you feed a diabetic sugar cubes? would you give a peanut butter sandwich to someone with a peanut allergy? Would you take diet advice from someone that cant even look after their own dietary needs?

So if your offended by this - GOOD, its your wake up call to get angry enough and harden the F*&^% up. Your decision to continue with the STARCH eating is harming you weather you want to believe it or not.

I suppose that makes me soft in the head then and yet I seldom complain of pain because my disease has been well controlled with Remicade for 5 straight lovely years and counting. My CRP currently sits at a whopping 2.

Good try but I'm afraid that I'm not offended. I am delighted that you are experiencing such success with the diet Darryn. I wish you were able to be as happy for me but we are all a little different I guess.

Welcome back.
mig

i am very happy for you mig, if you have your AS under control without diet control you are winning the battle. if i could afford , id use the latest in drug technology also, but im a mere spinach eating peasant. Anyway Mig, i dont see you persistantly posting how rotten life makes you feel without doing a single thing about it.

Darryn - heigh man, great ter see ya, ter see ya great! Fraid I only so-so follow the LSD. Break out of it every so often. But know IF I am in pain then *entirely* MY OWN flippin FAULT.

Can't go along with ALL aspects of the London Diet 100%. There are many items on the London Diet that would throw me into nasty wobblies, especially with the gut reactions. NOT going there, not for anyone! But, plain ole starches, OK, go along with cutting those down - which is what I sort of do. And, NO fried foods (loath fried foods anyways, can't stomach fried. Add in fats to that as well. Shudder. Mega YUCK.)

Take care man.

Molly C (France)

hey there friend!! thats the point im trying to make, if you eat starch and end up in pain....its your own fault. I ate a massive garlic bread pizza base last week - just to feel the pain. it worked, i ate massive amount of starch - i created a massive amount of pain. . im drug free NSD

I don't think any of us are soft in the head...what does that mean exactly? stupid? nieve? or just that we don't agree or follow what works for you?

What you need to remember is each persons circumstance is different.

I know several people here who have tried the diet faithfully but it didn't give them enough relief, ME being one of those and had to go to Remicade. I feel like I tried the diet to the best of my ability and I am not going to have someone rake me over because what worked for one didn't work for another.

I don't think it is ever a good idea to use such generalization, that just doesn't even make sense EACH person is different. You and I could both have the same kind of cancer but might have to have two entirely different treatment regimens.

I can't imagine ANYONE here wanting the pain and strife that comes from AS. If someone is griping is that not what we are here? a SUPPORT group???

I am glad that you are maintaining relief thru your diet and apparently willing to fall off the wagon for your selfish desires of garlic bread but don't gripe at us when it doesn't work for everyone.

You know there is that old saying...when you can't say something nice!

Lisa

Most folks misuse the term ironic. They describe things that are paradoxical, satirical, sarcastic or sardonic as being ironic

Clearly, however, you were going for irony here.

I have no problem with irony or tough love. Both work well when the intent is munificent and the heart is hopeful.

Hey Darryn,

have you ever tried antibiotics to complement the diet in taking down those Kleb levels?

Not everyone is wired the same so one cannot say that diet will work universally. Same with medicines and exercise etc.
What you are saying is that the diet is a cure but that would not be a factual statement. There are no cures.

when ever i can get my hands on em! i just took a heap ..better than ozone sterilized spinach