Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group refusing to adjust your diet - ur soft in the head

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I am new but I will say that for the last 15 months I have been on a great 'diet'. But in the last 8 months my back has gotten worse and worse!! (I was just diagnosed about 3-4 days ago, finally)
Breakfast:
1oz oat meal
6oz berries
8oz yogurt
LUNCH:
6oz cooked veggie
6oz salad/1tbsp dressing
4oz protein
1 piece of fruit
DINNER:
6oz cooked veggie
6oz salad/1tbsp dressing
4oz protein
3oz rice

Nothing in between, this is it.
Now, this is pretty close to what the 'diet' suggests and I still have great pain!! I am glad that I got my diet under control prior to being diagnosed.
Hope we can all find something that works great for us!!

Darryn,

You have been asked by several admins and moderators to please use a less provocative tone. You may have noticed that several people have been offended by both the title and the content of your original post in this thread. KickAS is a site dedicated to supporting people who suffer from a debilitating disease. Many are living in significant pain and do not deserve to be subjected to your scathing attacks. People are not asking you to be "cruel to be kind" so it's quite inappropriate for you to decide to try to use this tactic.

I know that members who do not follow the NSD are nevertheless delighted to hear of success stories from those who do just as we are delighted when we learn that a medication such as Remicade is successful. This does not justify anyone trying to coerce others into following whatever treatment happens to be working for them.

You have expressed considerable anger in a number of other threads, including the one in which you decided to leave KickAS. Would you be comfortable if another member suggested that "you need to get in control of your emotions if reading someone's post on the internet is triggering your anger"? Please consider, before posting, the impact your words may have on other members. One way to do this is to consider how you would feel if these words were directed to you.

KickAS is a wonderful site. It is rare to find a forum where the tone is so consistently positive and kind. It would be disappointing if this standard were to be lowered on a regular basis and people no longer felt welcome and supported. Please consider how you can contribute to the positive content of KickAS.

angry, lol give me a break please. perplexed yes, frustrated yes...but angry now thats laughable..im afraid your assumptions are totally incorrect with this one wendyR. (edit)

Wendy you are square on when you say KickAS is a wonderful site.

I also believe that this "little issue" too shall pass..lol

You totally summed it up when you said this site is dedicated to supporting people with a dibilitating disease and that is what I love about this place is that you can come and basically lay yourself at KickAS's feet and you will be swallowed up in love and support! We hear all the time that this site is like no others and that is why I think KickAS is number one.

Hugs,

Lisa

Cripes, I wouldn't give a 'Peanut Butter' sandwich to anyone....blurghhhh.......

mmmm peanut-butter and bacon sandwiches

Ok this one is for you James and Alan..lol

My husband thinks he is Elvis..he loves grilled peanut butter and banana sandwiches, and they are actually good.

Hi Darryn

You've obviouly been reading too much "how to win friends and influence people" while you've been away! lol

Forget the diet for a minute - imagine we were talking about something else like religion or politics. You cannot tell people what to think or what to do! People have freewill - it's one thing that makes us human. We are not all the same and do not think the same - that's what makes this world interesting and diverse!

Although I believe NSD to work for me - I do not think it is a complete answer. I think exercise is an essential component too and I also think that physical trauma has triggered my AS in at least one instance.

You have the freedom of speech - but I think it's more construcive to use it in an encouraging, informative way.

This is a site where people share the same disease as you. It's not kind and supportive to shout at people and bang their heads against the wall for them! Alienating people is counterproductive.

You are giving the NSD bad publicity by demonstrating that it has turned you into a raving lunatic!!!! lol

I hope you can see that I'm jesting a bit here not having a go at you.

Darryn, it is NEVER kind to be cruel and you should regret this entire thread.

If a newbie joined KA today and read this thread do you actually think they would be inspired by what you have said to try the NSD? NO WAY! I'm afraid your good intentions are hugely misguided. What you said and the way you said it would have instantly got their back up and put them in defence mode. It's unlikely they would even consider trying the diet now. You are doing more harm than good.

If instead they were greated with positive success stories and a suggestion to perhaps try the diet as an option at some stage and see if it worked for them then they might just consider it. And who knows, if it did work for them they could be on their way to pain-free days ahead.

As an advocate of the NSD and the spouse of someone doing fantastically on it and also as a moderator here, I beg of you...please stop these kinds of posts. You are truly helping NOONE if you continue in this manner.

Hi Darryn,

I do not have AS but my husband does. My husband gave his best shot at 6months of the NSD/sugar/dairy etc with no definitive improvement- so he has given it a rest for a while. Anyway I sometimes find myself telling him off if he eats some rubbish and making him feel guilty for having it. Meanwhile I still have my treats and spoil myself. I know I'm 100% wrong to do that because I am not in his position and do not feel what he feels. He has lost so much to AS and why shouldnt he be allowed to enjoy some starchy food- it's his life and his pain. I know you are excited about the NSD and want to help others but you will honestly put them off instead. Remember you don't know what others are dealing with, not just AS but family circumstances etc. You also don't know their pain- we are all different. Some have so much to deal with and just to get though the hour is tough and they don't need to be told off.

I hope there will come a point when my husband is ready to try the NSD again and this time without any NSAIDS but to get him to that point he needs to be motivated by reading success stories etc, not by telling him he's stupid. Or maybe NSD may not be the thing for him but I respect him for his courage in the constant battle with AS.

For example, I know myself if someone tells me I'm fat then I will just eat more chocolate but if someone makes me feel good about myself and uplifts me then I will be motivated to get in shape.


Kind regards,

Emily